No es cine todo lo que reluce#LOCARNO78. #NuMăLăsaSăMor (#DontLetMeDie) propone un extraño cruce entre drama social, humor negro y cine de género para indagar en la identidad del individuo que se siente ajeno al colectivo.
Crítica de @danielfarriol:
MEActNOW
ME/CFS Medical EducationUncomfortable but important reading for any clinician: ME/CFS sufferers protest to demand decent medical care and treatment, and share their experiences of medical neglect. #MedEd #MedTwitter #MedMastodon #MedicalEducation #MECFS #pwME #LongCovid #DontLetMEDie
https://mecfs-med-ed.org/2023/03/13/dontletmedie-protest-me-cfs-patients-demand-medical-treatment/
CyrusThe nasojejunal tube has been placed, the insertion went quite smoothly. The gauge is quite small so it isn’t uncomfortable, unlike the nasogastric tube I had in January, but I hope it won’t get jammed in the long run.
Now they’re going to give me erythromycin so that the tube slides into my small intestine, then tomorrow they’ll do a X-ray scan to check if it has actually gotten in there and start the feeding.
#MECFS #pwME #DontLetMEdie #NEISvoid #gastroparesis #ChronicIllness #disability
Going to the nutrition department at the hospital for a couple of days to get my nasojejunal feeding tube placed.
I weighed in at 46.6 kg / 103 lb this morning (BMI 14.5), meaning I’ve lost another 1.5 kg / 3.3 lb since I went for my initial appointment in the same department last month. And I’ve partly had to go on a liquid diet because my digestion has worsened, so it’s about time I get adequate nutritional support.
#MECFS #pwME #DontLetMEdie #LongCovid #NEISvoid #gastroparesis
Wolfsong12This thread is excellent👇👇 #MedTwitter .@NHSEngland @DHSCgovuk @gmcuk please don’t ignore us and please #DontLetMEDie
---
RT @exceedhergrasp1
TW: death, severe illness
Here to support #DontLetMEDie! Let's talk about severe ME.
ME, usually #MECFS in the US, is a neurological disease initiated by infection ~80% of the time. Because it's neurological, it presents with symptoms in every system. 🧵
https://twitter.com/exceedhergrasp1/status/1633534573165568000
Have the same problem. #LivingInTheGap between not well enough to work but not sick enough to leave. PIP assessors would laugh me out the room 🙁
---
RT @hons65
Lying down at work cos it’s the only way I’ll get through the day. Can’t work full time due to #MECFS . Ill over 11 years. Hoping I’ll reach retirement before working myself into an early grave. #DontLetMEDie
https://twitter.com/hons65/status/1633452488631148545
---
RT @hons65
Lying down at work cos it’s the only way I’ll get through the day. Can’t work full time due to #MECFS . Ill over 11 years. Hoping I’ll reach retirement before working myself into an early grave. #DontLetMEDie
https://twitter.com/hons65/status/1633452488631148545
Why haven’t the @MEAssociation or @actionforme shown any support for the #DontLetMEDie protest today? I don’t understand, this is the community you exist to support, so where on earth are you??
This #InternationalWomansDay how many more women will die or be refused treatment by @NHSEngland because they have #mecfs? NHS I love & support you, but now it’s time for you to do much better by this community, before more people die. #DontLetMEDie
