Mastodawn

Living With Breathlessness? Could It Be Idiopathic Pulmonary Fibrosis?
Are you living with shortness of breath and a persistent cough? Don't dismiss it as just getting older. Learn about the symptoms of Idiopathic Pulmonary Fibrosis (IPF) and when to seek a diagnosis.
https://www.linkedin.com/pulse/living-breathlessness-could-idiopathic-pulmonary-fibrosis-arya-jain-4hvqc

#IPF #PulmonaryFibrosis #Breathlessness #ChronicCough #LungHealth

Living With Breathlessness? Could It Be Idiopathic Pulmonary Fibrosis?

Breathlessness is often brushed off as a normal result of aging, a hectic lifestyle, or even lack of fitness. But when this shortness of breath persists or worsens over time, it could be a warning sign of a more serious lung condition.

Lucilla Piccari Dec 4, 2023

Please watch Sarah's story & other testimonies from #PHAUK on the journey to diagnosis of #PulmonaryHypertension

During 8 long years of #breathlessness, she faced disbelief from doctors who told her she was "unfit" & "anxious", then a diagnosis of chronic fatigue sd, before a correct PH #diagnosis.

#medicine #MedMastodon #Dyspnea #PCCM #Pulmonology #cardiology

https://youtu.be/6UY__sr2mgk?si=jnPJJyZ__tMK3Pbm

Sarah's story (subtitled)

YouTube

AutisticMumTo3 She/her Sep 8, 2023

Long Covid brain fog may be caused by blood clots, says study | The Independent
https://www.independent.co.uk/news/health/long-covid-brain-fog-blood-clots-b2403152.html

#LongCovid
#BloodClots
#BrainFog
#Fibrinogen
#DDimer
#Breathlessness
#Covid
#Coronavirus

Long Covid brain fog may be caused by blood clots, says study

Long Covid patients are not getting the attention they need, said one expert

The Independent

RockyC Jul 25, 2023

“Symptoms of #LongCovid range from the profoundly disabling to 'merely' upsetting. Those with long #Covid frequently display a core set of symptoms, Altmann says, including #breathlessness, #fatigue, #wheeze, post-exertional #malaise and #BrainFog.

But about 200 other symptoms are also associated with the disease, and can come and go, including word-finding difficulties, #insomnia, skin #rashes and new #allergies.”

https://www.rnz.co.nz/national/programmes/saturday/audio/2018899512/prof-danny-altmann-the-burden-of-long-covid

Prof Danny Altmann: the burden of long COVID

World leading immunologist Professor Danny Altmann has declared the future burden of long COVID to be "so large as to be unfathomable". He has published a scientific review of long COVID in Nature, asserting if 10% of acute infections lead to persistent symptoms, up to 400 million people could be in need of support for long COVID worldwide. While the Australian government has allocated $50m for long COVID research, in New Zealand there has been zero investment for bio-medical long COVID research to understand and treat the condition. Professor in the Faculty of Medicine, Department of Immunology and Inflammation at Imperial College London, Professor Altmann has been studying T cells for four decades, and is interested in why people suffer debilitating consequences so long after COVID infection.

RNZ

Show thread

Professor Kerstin Sailer Jul 14, 2023

And some background to the programme
#LongCovid #ENObreathe #EnglishNationalOpera #music #choir #lullabies #breathlessness

https://youtu.be/I7GVz-Egwi8

Lullabies - An ENO Breathe Creative Project ǀ English National Opera

YouTube

AusSMC Apr 17, 2023

😷Disturbed sleep could be a culprit behind Long COVID breathlessness

😴Understanding the link between sleep and symptoms could lead to better treatments

#LongCOVID #sleep #research #breathlessness

https://www.scimex.org/newsfeed/disturbed-sleep-may-partially-explain-long-covid-breathlessness

Disturbed sleep may partially explain long COVID breathlessness

Disturbed sleep may partially explain long COVID breathlessness A UK study has discovered that disturbed sleep patterns in patients hospitalised with COVID-19 are likely a driver of breathlessness, and can persist for at least a year after infection. Sleep quality was assessed using sel

Scimex

TessMMeyer Jan 5, 2023

#Crash ed at 4 a.m. Hard.
First feeling of #malaise, then return of all #symptoms I had thought gone Post-#Paxlovid Post-#Nattokinase (week 8): pain in muscle & joints (woke me), leaden, #breathlessness, #tinitus from hell. Eyes watering. Lymph nodes of fire.
Pulse 57, blood pressure normal, blood sugars normal, oxy normal. Crazy.
Paracetamol. Ceterizin (anti-histamin).
3+ hrs sleep in morning. 2+ hrs sleep in afternoon.

I'm just creeping back up, scared now.

What even was that??

TessMMeyer Dec 1, 2022

First #lecture after my 2nd Covid infection & I'll not lie: Going in there to face 100 #students who pull their masks on at my request after they've sat in the room by themselves is daunting. I come with a FFP2 #mask & a small portable #air-filter. Having to speak for 90mins without a drink is daunting too: a test for my #cough & #breathlessness. I have no plan B I'm afraid: we are ordered in presence.
Sally is holding my hand, that is a comfort this morning.