1 Followers
13 Following
20 Posts
@studyinmovement on twitter/IG
👩‍🦼#hEDS, #POTS, #MCAS, etc
Baltimore 🦀
I wish they’d put the public back in public health & also the health back in public health

#NEISvoid - I'm looking for any hope that small fiber neuropathy can be helped/improved? Right now my docs are just recommending to up my gabapentin dosage. I use lidocaine gel pretty liberally.

Any stories or suggestions? My diagnoses are in my bio.

#introduction post:
Same handle as on Twitter - I'm in my late 30s, I live in Baltimore with my spouse and our 2 kids. I have hypermobile Ehlers-Danlos and many of its comorbidities, and #NEISVoid on Twitter has been very helpful for me! #hEDS #MCAS #POTS #SFN #pSpA

My other big community on Twitter is fellow music-lovers. Catch me seeing bands like Kali Masi, Spanish Love Songs, Kevin Devine, Sweet Pill, and I can keep going on forever. I'm hoping to keep connected with Twitter friends 🤞