Thinking of everyone with #LongCovid #MECFS #pwLC today. It’s Easter and many people are celebrating with their families and friends today. Not me though.

I was quite active the past two days. On Good Friday I went to church and later baked a cake for us. We also cooked dinner together.

Yesterday we met up with family in a pub nearby. That was nice, but I could already feel that the general noise and music were really tiring me out.

1/3

2/4
Today I cannot do anything but sleep and rest. A quiet and dimmed room with no input to my brain is all I can handle. I slept thirteen hours through the night and, after a late breakfast, went straight back to bed. My brain feels very mushy.

Right now my family are gathered at my sister-in-law’s for the big Easter dinner, and there is no way I could be there. I had to drop out. All the people and their chatter would be massively overwhelming for me.

3/4

I regret having been so active the past two days. I pay the price for that now, and the price is high and it hurts. Yes, I enjoyed myself, but I wonder whether I should have paced myself better.
My wonderful husband warned me, but I wouldn’t listen. #pacing
#PostExertionalMalaise

I can’t overemphasise how frustrating and exasperating it is to have Long Covid. My life is just a few shards of the one I had before #Covid.

4/4

And I’m forced to walk through it with a thirty-pound lead ball locked to each of my ankles.

@longcovid @mecfs
#postCOVID19

@swoonie @longcovid @mecfs I am so sorry. I suffer long covid too but much less severe. I applaud the amount of activities you did and that you took good care of yourself today. Both are victories 🫶
@3x10to8mps Thank you so much, Lisa. That’s a really great reply to cheer me up! ☺️💜