Today we learnt that there's an overlap between neurodivergence (especially autism) and migraines.

We've had several instances recently, particularly where we've pushed ourselves too far, where we've experienced what we thought were neurodivergent verbal shutdowns, as we're AuDHD.

We'd experienced such things for at least a couple of decades, even before our ASD diagnosis (still waiting on the ADHD one though). We previously attributed it to normal fatigue. Then we'd describe it as a language centre collapse (or a full batting collapse).

However, it was never clear why painkillers like ibuprofen lysine or naproxen (NSAIDs), paracetamol, or codeine phosphate always helped to both prevent or alleviate symptoms.

Warning signs for us have typically been:

  • Increasing pain in middle of forehead or above eyes
  • Increased light sensitivity.
    • We've often had to wear our prescription sunglasses to keep working.
  • Feeling more fatigued and finding it difficult to focus.
  • Finding it harder to understand spoken or written language.
  • Slurred speech and difficulty writing.
  • Making silly errors and typos.

Once it gets fully going, symptoms include:

  • Aphasia.
  • Trouble with body coordination.
  • Partial or total verbal shutdown.
    • One time Evie couldn't even think coherent sentences, so our headmate Hannah told us what to write to communicate with our wife.

All this time, we'd been thinking this was solely a neurodivergent overload issue. But now we've found out it might actually be some form of migraine, sand this is potentially something we can get meds for (such as gepants).

We intend to book an appointment with our GP about it to investigate further, as it's happening increasingly often, especially since we entered AuDHD burnout.

For further context, headaches are common in our family and our sister has migraines with auras.

#neurodivergent #neurodivergence #ActuallyAutistic #ADHD #AuDHD #VerbalShutdown #migraine #AuDHDBurnout #NeurodivergentBurnout #gepants #NSAID #codeine

“Going non verbal” isn’t a thing

Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

YouTube
@SleepyCatten I've been looking for resources on the topic. There seems to be a non-zero overlap between migraines and neurodivergence just in general that often goes unnoticed because it's easy to attribute some symptoms to only one or the other. Or at least that's what I'm finding out the more I talk with folks about it. It's really comforting to see someone talking about this.

@SleepyCatten
I don't get migraines often, tho I have a few times. And some related symptoms like I had a seizure once.

But I do often get very overwhelmed and will shut down, going so far as to loose the ability to speak.

And even without any obvious tangible pain like a migraine, I still find pain relievers often help me. I just chalk it up to brains are confusing and maybe pain relievers can help even with less tangible pain like emotional overload. But who knows, it might just be placebo in my case.

@gnomekat There are migraines without pain too 🩷

We don't always experience head pain as a warning sign or during verbal shutdown.

@SleepyCatten
What's a painless migraine like? I have never heard of them

@gnomekat They're also called silent migraines. You can get an aura (like flashing lights) but no associated headache / head pains.

We're fairly certain that there is pain associated with all of ours, but that we've misdiagnosed it as a mere headache rather than migraine-related head pains.

@SleepyCatten You don't get auras either? I thought maybe it was because I'm blind that I don't. I'll have to check out the video you posted when I get a chance.
@SleepyCatten Also, the #VerbalShutdowns coinciding with #Migraines tracks with my experience too, but then, any kind of significant pain can throw my verbal faculties into a tailspin. And yeah, definitely can relate to the pushing-too-hard thing; I've had to carefully schedule my work so as not to do that--especially since my work is language instruction nowadays. LOL

@Tarrenvane We've had exactly one migraine in our late teens that would be best described as a kaleidoscopic aura. Since then, no auras.

We do have aphantasia though, so maybe that figures into it.

@SleepyCatten those symptoms definitely sound like a migraine to me! i have most of that as well. i don't get complete aphasia, but i get significant brain fog and difficulty forming sentences.

it would definitely be worth talking to your GP about whether that's a migraine or not

i'm not a doctor, but i'd guess they'd probably prescribe you a triptan before putting you on a new treatment. triptans can be pretty effective to treat or even completely abort a migraine. i usually still get fatigue and lingering brain fog after i take mine (rizatriptan), but it reduces other effects and eliminates the actual headache

according to wiki sumatriptan is available over the counter in the UK: https://en.wikipedia.org/wiki/Sumatriptan#Legal_status

but heed the warnings if you go this way, stroke is a possibility though rare

1/2

Sumatriptan - Wikipedia

@SleepyCatten there are preventative treatments that are off label drugs, but i think they'd usually not be prescribed unless you have more than a certain number of migraines per month

happy to talk more about this if you're interested, i'd explored the migraines and their treatments a bit over about the past 10 years

2/2

@jiub Thank you for the info and offer 🥰

We're gonna speak to our GP, as we're getting these events more frequently. It used to be once in a blue moon, whereas now it's a few times a month.

We intend to ask about a gepant like atogepant, as it seems to have fewer side effects than triptans.

@SleepyCatten tbh i'd be surprised if they prescribe you a gepant initially, due to its cost and novelty, but it's definitely worth asking about!

imho the side effects of triptans are pretty minimal, unless you have cardiac issues or are taking something that could interact with it. a lot of people feel fatigued or have other issues after taking a triptan, but that's generally from the migraine itself rather than the treatment (this was explained to me by a neurologist). triptans can greatly reduce migraine symptoms but they're imperfect and are most effective if taken at the right time

anyway, just my two cents, good luck with the GP! <3