BMJ e-letter:
"Why I’d rather have a well-researched and well-informed doctor"
Free:
https://www.bmj.com/content/376/bmj.n3102/rr-0
"the NHS simply does not offer any kind of useful care" [for ME and #LongCovid]
#MEcfs #CFS #PwME
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome @longcovid
#LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC #COVIDBrain
Thanks for the link, Tom. We definitely need more doctor education!
Anyone reading this can share the Mayo ME/CFS CME (continuing medical education) with their doctor(s):
https://millionsmissing.meaction.net/treatme/
Half of Long Covid patients meet ME/CFS diagnosis.
The link above is for folks in the USA, but #MEAction also did outreach in May in some other countries:
https://www.meaction.net/2024/05/17/teachmetreatme-celebrating-an-impactful-campaign/
Short quote from the letter linked in Tom's post:
"I have sat through countless GP appointments where I have had to explain the basics of Post Exertional Malaise [PEM], the cardinal symptom of ME, before going on to discuss treatment."
I've had similar doctor visits.
It's frightening that so many doctors know so little about ME/CFS.
Tom Kindlon
Ahimsa