FrootloopsNov 16, 2023

Turns out not every all-consuming headache is a #migraine
I though it was an umbrella term for a larger category of pain…feelin kinda dumb lol
So glad I figured this out before they started mindlessly throwing some hip new migraine pharmaceuticals at me
It’s definitely #cervicogenicheadache
Anyone have #cci #neckbrace favorites? recommendations? I’ve given up looking a few times now the flood of options is so overwhelming😵‍💫

#craniocervialinstability #actuallyautistic #audhd #chronicpain #cgh

Show threadAerlissNov 16, 2023

@whyarewe I'm the opposite, I've been assuming my migraines are headaches. Turns out I have suffered through waaaay more than the 3 a year average I've been telling people.

I am here for the hip new migraine pharmaceuticals. Gimme.

Show threadFrootloopsNov 16, 2023
@Aerliss lol that’s what I started out thinking too! Until one time someone got mad at me for bailing on plans bc of a “headache” (what I called it at the time) and to resolve we both started asking third parties if they would have attended this subjectively important event with a headache.
A few people answered something like “my headaches are always migraines so no” / “plain headache maybe but not a migraine” …blew my mind and also felt so validating😆
Show threadAerliss

@whyarewe that was why I thought they were headaches; because they were mild. I thought it was only a migraine if I got the aura and collapsed 😅

But talking with my doc & the headache specialist I've learned that migraines can be mild, & even occur without aura & other symptoms.

My first lightbulb moment was learning that most people don't get more than a couple of headaches a year. Like... damn, I get one a week!

And now I have chronic migraine. Literally hasn't stopped for three months.

Nov 16, 2023 at 7:45pmTusky