Today is a hard Long COVID day. My brain is working well in terms of accessing information and logic. But I’m terms of keeping on task and super short term memory it is shit. I keep looping.

My food is in front of me but I keep forgetting to eat it. No sense of time. 5 minutes is eternal. An hour goes by in a flash. I don’t know if the #cancer is bringing the malaise and #fatigue or the #LongCOVID or the #Fibromyalgia.

Chronic illness was never fun. But since February I wonder way more if I’m learning a new way to live or just dying very slowly…
@Tinu I often feel like I’m dying very slowly. Every year I lose more function.

@annedraya I’m so sorry that’s your reality. Sounds so taxing, emotionally and physically.

Before this year I boomeranged. Now every time I try to regain function I get worse. Definitely relate.

We both deserve better. 💙

@Tinu Ooof. Both?

I'm sorry. I understand. My body is slowly degenerating so my brain has started breaking down time differently to match. Time is in tiny increments now, and I am grateful for the plateaus. Was I not worse when I woke up this morning? Was today the same? Did I get through a whole week without a wild fresh new hell my body came up with that I have to handle?

If yes, then I try to make that good enough. I never have ANY idea what time or day it is anymore though.

@Tinu Upside - I have a lot of cool clocks around the house now
@Tinu So I offer sympathy and fun clock ideas
@GayleForce Enthusiastically accepted.
@Tinu My absolute favorite clock! The fish come with and then you can buy more little removable 3M sticky pads so you can arrange them differently whenever you want. I randomly decide to change them up, it's extremely fun. Sometimes they are swimming around the light, or all up the wall
@GayleForce Ooooooo!

@Tinu I saved up for ages to buy it, but I also get to actively play with it all the time. Worth it.

Googling "modern cuckoo clocks" is also a thing I've been doing lately (silent switch required) since a Totoro clock in didn't quite survive a move . . .

If I'm going to have to survive in seconds and minutes, I like watching them pass on something that brings me joy

@Tinu sorry you are going through all this.
@Tinu I'm sorry you're having a really tough time. ❤️
@jai_oh Thank you 💙 - hoping other people going through this will see this and know they aren’t alone. It’ll pass. I appreciate your compassion.
@Tinu I'm sorry you are going through this. Also, I've rarely seen such a clear in-the-moment explanation of attentional deficit.

@Naogur Thank you. It’ll pass! And I’ve had lots of practice! Figure if I can use what writing talent I have to show people they aren’t alone in #ExecutiveDysfunction, it’ll be less scary.

And maybe one day, accommodations for our attention deficits in any neurodivergence will be possible. Maybe it’ll be as normalized as wearing glasses one day.

@Tinu I'm sorry you're going through this nightmare.

@Tinu

I am so sorry you are struggling. I have not experienced this, however I do have many friends who are. My heart is breaking for each and every single soul who is hurting! My hope is one good thing will come from this pandemic and that is interconnectedness and a raised awareness (resulting in help) for this & other chronic conditions.

@Tinu

Actually that is sort of two things - but they are connected. You can’t really have one without the other..

@wheels You're right it IS two things and you are almost too sweet for words.

Thank you so much for sharing them with me. ♥️♥️