@poconnor I'm finding them quite filling, too. They've pretty much been my breakfast this past few days.

So far, I've tried Lemon, Red Berry, Banana & Chocolate. Weirdly banana is probably my favourite so far.

Still have vanilla to try, then I will move onto the GMPro samples that arrived yesterday.

Not sure which I'll settle on. ;)

#pkuproblems

I'm thinking about #PKU supplements, our special drink, medicine... What ever you call it!

I'm changing to a new type & wondering what affects your choice of supplement. Is it just the taste, or how easy it is to get, to take, to carry, etc.?

#LivingWithPKU #LowProtein #RareDisease #PKUProblems #Phenylketonuria

Supplement, medicine, special drink... I'm thinking about #PKU supplements this month.

First up, looking at if we actually manage all of our supplement.

If you have PKU, do you take your supplement every day?

#LivingWithPKU #AdultPKU #PCU #PKUProblems #PKUCommunity #LowProtein

I never take it
0%
I try, but can only manage half our less
0%
I usually manage most of it
0%
I take it all
100%
Poll ended at .

Watch out folks - #Shrinkflation hitting a #PKU favourite.

Unknowingly paid the same for these in the online shop. Koko have reduced the tub from 500g to 400g with no price change.

also annoying as no longer 3phe per tub

#LivingWithPKU #PKUProblems #pkulife #pkuawareness #livingwithpku #pku #phenyketonuria #Pku

Sapropterin blood genetics test for PKU Phenylketonuria

A year after I went in for blood tests to determine if my PKU would respond, I finally took my first dose of sapropterin.

Pig Pen