SohebTo all PKU folks - Share your story!
@poconnor has got some great PKU stories on her blog - one from yours truly ๐ง - and you can add your story into the mix as well!
Visit this link to find out more: https://www.pigpen.page/share-your-story-2/
poconnorGetting ready for Valentine's Day - and Pancake Tuesday :)
An easy low protein recipe for reliable PKU pancakes: photos & video guides :)
Ideas for protein-free, and measured protein toppings.
https://www.pigpen.page/pku-pancakes/
#PKU #LivingwithPKU #LowProtein #LowProteinIdeas #Phenylketonuria #Pancakes
๐ Please share with patients, clinicians, and anyone who might be catering for someone on a Low-Protein diet this Christmas
๐ก Tips and links to help with a low protein Christmas or Thanksgiving. Iโve included menu suggestions & recipes, but letโs start with making the festive season friendlier to those on restricted diets.
Merry Christmas ๐
#PKU #LowProtein #LivingWithPKU #RareDiseas #MetabolicDisorder
๐ฅ Recipe ideas! Four quick โschool-nightโ dinners
Quick, easy dinners that satisfy both the PKU diet and your taste buds.Three recipes are Phe-free; the fourth has 2.5 g Phe per adult portion, with optional additions if you need more.
https://www.pigpen.page/four-quick-school-night-dinners/
#LivingWithPKU #BackToSchool #PKU #PKUFood #LowProtein #LowProteinIdeas
Just tried using the Mevalia rice and it's the one for me (an old photo of the rice with veggies).
For one I have freedom in cooking the rice (I cook it in water with vegetable stock cube mixed for added flavour). Another reason is I can taste each rice grain.
Third is that it ain't sticky when cooked (unless overcooking).
This is one of the rare PKU rice that doesn't taste like pasta but manages to be even better than normal rice lol.
Finally - an actual PKU post!
I got an email from Promin saying they've got this new low protein rice - rice which is pretty much "normal rice" but has gone through some process to make it only half an exchange.
As someone who loves rice, I'm going to give this a try later on!
You can buy the packet of rice online here: https://prominpku.com/product/echigo-low-protein-pre-cooked-rice/
#phenylketonuria #phenylcetonurie #pcu #pku #lowprotein #lowproteindiet
The brilliant @poconnor has shared a PKU friendly recipe - Fennel and Orange salad (with clearly detailed ingredients that have protein, so you know where to skip):
https://www.pigpen.page/fennel-and-orange-salad/
#pku #lowprotein #phenylketonuria #pcu #phenylcetonurie #food #recipes #lowproteinrecipes #diet #lowproteindiet
July news from PigPen is out now, with the latest on:
๐ #PKU news, including approval for a new treatment
๐จโโ๏ธ A Men's Health care strategy in the UK
๐ง Neuroplasticity in #BrainInjury recovery
๐ฅA #LowProtein 'no-cook' recipe to beat the heat
๐โโ๏ธ An epic 372 mile run for #charity
PLUS! ๐ new #books for PKU kids, full of low-protein foods. ๐
๐ Free to subscribers (and subscribing is free!) ๐ฅณ
I wish more people knew about the use of food restrictions as a medical treatment.
Many see the word 'diet' or food restrictions as a lifestyle choice, to be ignored or dismissed.
In truth, many medical conditions are treated through the use of food restrictions.
You never know what someone else is dealing with, but you can choose how you react to their requests.
What do you wish people knew more about?
#LowProtein #PKU #Phenylketonuria #RareDisease #MetabolicDisorder #LivingwithPKU
Just released my new PKU books. An ABC reader and a colouring book ๐
- Designed especially for children with Phenylketonuria
- Full of foods which are considered protein-free for PKU in the UK,
- and have been checked by PKU clinicians.
Let me know what you think, or grab your copy here:
