Navigating Life's Challenges.
Change is a constant in life. Whether it’s a global event, a personal health journey, or an unexpected disruption, we are often forced to adapt to new realities
Explore how spoon theory and ambiguous loss shape our willpower and resilience. Learn to navigate change, chronic illness, and daily energy limits with practical insights.
#SpoonTheory #MentalHealth #Resilience #PKU #BrainInjury
RE: https://pkutalk.com/@soheb/116188606885004550
The results for this bloodspot was 227umol/L!
My weight lifting seems to be helping quite a bit with the bloodspots! Also, I've rounded down with my exchanges, which has helped quite a bit (I rarely ever hit 2 exchanges exactly).
I'm trying to cook my own food now to cut down on visceral fat that my weighing scales report back, so next results should be interesting...
March PKU & Brain Health Update:
- Rare Disease Day equity report,
- PKU research, pancake recipes,
- brain injury app trials,
- and a book sale ending 7th March!
Share your story & support the community.
https://www.pigpen.page/march-2026/
#pku #rarediseaseawareness #shareyourstory #phenylketonuria #braininjury
@soheb Is this really the latest thread we had? If so, that's probably my fault, I hadn't done one in a way too long time...
Well, I finally did it today. And it was looking really good after four circles. Maybe we should trade cards, you would have good use for five circles and I seem to hit the limit at four. 🤪
Mark Gadala-Maria (@markgadala)
Helios 프로젝트의 공식 페이지 링크가 공유되었습니다(https://pku-yuangroup.github.io/Helios-Page/). 논문·데모·코드 및 프로젝트 자료를 통해 Helios 비디오 모델의 상세 구현 및 성능 정보를 확인할 수 있는 개발자용 리소스 페이지입니다. 호스팅 조직은 PKU Yuan Group 계열로 보입니다.
To all PKU folks - Share your story!
@poconnor has got some great PKU stories on her blog - one from yours truly 🧐 - and you can add your story into the mix as well!
Visit this link to find out more: https://www.pigpen.page/share-your-story-2/
Your Story Matters!
For Rare disease day, people with PKU are sharing their story.
👧 Clair discusses parenting with PKU, when your child does not have PKU - and the interesting challenges she has faced.
🍫 Ifan shares his experience navigating the manosphere, and what that meant for his PKU and mental health.
📦️ Soheb wrote a series of blogs for PigPen - looking at moving home with PKU, and getting into the gym.
Good news, did a blood spot recently! Came back 226umol/L! 🥳🎉🎊
#phenylkeotnuria #PKU #Phenylcetobnurie #PKU #bloodtest #health #nhs
Getting ready for Valentine's Day - and Pancake Tuesday :)
An easy low protein recipe for reliable PKU pancakes: photos & video guides :)
Ideas for protein-free, and measured protein toppings.
https://www.pigpen.page/pku-pancakes/
#PKU #LivingwithPKU #LowProtein #LowProteinIdeas #Phenylketonuria #Pancakes
poconnor
Soheb
Caoimhín
sayzard