poconnorA great start to the week!
The latest issue of the NSPKU News & Views popped through the door first thing.
#LivingwithPKU #PKUcommunity #PKULife #Phenylketonuria, #PKU
Catch up after the summer with curated news on PKU, brain injury, and mental health.
Monthly newsletters for subscribers.
π to join, and
π get the "Mental Health and PKU" ebook too!
https://www.pigpen.page/sept-2025/
#PKU #LivingWithPKU #PKULife #LivingWithMildBrainInjury #Concussion #MentalHealth
Mark MaguireInternational PKU Day today and the start of the summer holidays for our youngest child and PKUer. So sheβs double celebrating with a pack of Wotsits and 6 Rowntreeβs Randoms while bingeing Star Versus the Forces of Evil. #PKU #PKUday #PKUday2024
#PKUlife #PKUdiet
https://www.espku.org/projects/pku-day/
#PKUlife #PKUdiet
https://www.espku.org/projects/pku-day/
Damian J.As a #pku child, I started eating meat, under controlled circumstances, aged 15. By 18, I had returned to a normal diet.
I'm now careering toward 50 and have been off-diet for over 30 years.
Asking fellow PKU-ers if anyone has any recommendations for guidance on returning to a strict low-protein diet in later life?
PaulTW: blood & needles
Tips for #PKU #BloodSpot
The #sapropterin trial meant daily #tests & I review different lancets & offer tips
TLDR: lancet has big effect on pain & healing as does choosing the site
Sneak peek for PKU Talk folks:
A new video review of #LivingWithPKU featuring our very own @jjunebrown
Thank you so much for this!
P.S if anyone has a good captioning to, please let me know!
Watch out folks - #Shrinkflation hitting a #PKU favourite.
Unknowingly paid the same for these in the online shop. Koko have reduced the tub from 500g to 400g with no price change.
also annoying as no longer 3phe per tub
#LivingWithPKU #PKUProblems #pkulife #pkuawareness #livingwithpku #pku #phenyketonuria #Pku
Loganberries are a thornless cross between blackberries & raspberries.
Phe- free, tasty, and more productive than all my strawberry plants!
#Sapropterin blog series - with correct link!
Sapropterin trial, part 1: genetics & patience.
https://pigpen.page/sapropterin-trial-part-1/
#LivingWithPKU #AdultPKU #PKU #Kuvan #pkuawareness #PKUFitness #pkulife #pkuproblems #pkustrong
