poconnorJun 24, 2023

#Sapropterin blog series - with correct link!

Sapropterin trial, part 1: genetics & patience.

https://pigpen.page/sapropterin-trial-part-1/

#LivingWithPKU #AdultPKU #PKU #Kuvan #pkuawareness #PKUFitness #pkulife #pkuproblems #pkustrong

Sapropterin blood genetics test for PKU Phenylketonuria

A year after I went in for blood tests to determine if my PKU would respond, I finally took my first dose of sapropterin.

Pig Pen
SohebMay 23, 2023

Decided to give ChatGPT a go and ask it some PKU related questions like can it give me some recipes for folks with PKU.

One of the responses was... uh... very very wrong!!

The other was vegetable stir fry, which had it not been for the contradictory PKU friendly stir fry sauce, then it would've been quite great!

(Soy Sauce is a sauce made of soy, which is high in protein, which defeats the low protein diet. ✨ The more you know ✨)

#pku #phenyketonuria #pkustrong #phenylcetonurie #pkuawareness