For folks with chronic conditions that lead to having problems with being cold in bed at night (chills, difficulty with temp regulation, etc), something that has really been helping me is sleeping inside my sleeping bag liner. It's a thin fabric tube that one would normally put inside their sleeping bag to stay extra toasty.

Mine is twenty years old and from the brand Sea to Summit. It's stretchy, so it's not binding. But it's very warm. I use it in bed, just crawl in and sleep normally. It's been a big help recently with the winter temps kicking in.

#ChronicIllness #Fibromyalgia #MECFS #dysautonomia

The other day I learned that one of our favourite book series, The Old Kingdom series by Garth Nix, had a new entry released in 2021.

We've been unable to read regularly for a long while now, as reading too much, learning new stuff or taking in new information, is difficult now and can properly burn us out for days or weeks at a time. Especially as the complexity increases.

However, I decided I wanted to have a go at re-reading the series. If successful, I could buy the newest book and give it a try!

Yesterday we started the first book in the series, Sabriel, and managed to read the Prologue + 4 chapters before our brain started to get hurty and we put it down.

Tonight we read another 4 chapters again, before the hurty started.

I think a lot of this is coming down to us having read the books before, several times, so the world, language, and concepts are not new to us, and it is also a YA series so, by its very nature, it is easier to read.

We are feeling quite proud of ourselves for getting as far as we have.

Even if we end up having to stop before we can finish the whole series, it is quite an achievement for us to have read *anything* so far.

#bookstodon #Sabriel #GarthNix #Abhorsen #MECFS #Brainfog #NEISvoid

#MEAction "Congress Tells NIH: Develop Plan to Implement ME/CFS Research Roadmap"

Congress has directed the NIH to develop an implementation plan for the ME/CFS Research Roadmap. Money must still be allocated to fund the roadmap. #MEAction has sent a letter to the NIH director https://4a6ff496-ce8b-4c52-93d2-15f9b79bd151.usrfiles.com/ugd/4a6ff4_807a55e657864f37ad522046a46ca06b.pdf asking for $50 million of discretionary funding.

@mecfs

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

RE: https://mastodon.ie/@IrishMECFSAssociation/116054466731120376

I have spent quite a bit of time/energy already on this and it is going to be my primary focus for the next few months. Please highlight widely. 🙏 #Ireland #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

Dr Bansal's 5 free Irish ME/CFS talks in #Cork/ #Dublin/ #Galway/ #Limerick/ #Sligo, May 2026:

Sign up for updates here:
https://docs.google.com/forms/d/1M8qs1H-2bnhDpPnF-aCobmXAN79C6xqJZZvNuS678G8/edit

Info also here:
https://irishmecfs.org/blog/may-2026-5-free-talks-by-uk-expert-consultant-dr-amolak-bansal-in-corkdublingalwaylimericksligo-followed-by-free-teacoffee-biscuits

Please share widely, tag others, etc.

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs

nichtgenesen #MECFS

"Wir müssen das Wissen in die Fläche, auch unter die Kollegen bringen."

https://www.aerzteblatt.de/infocenter/jede-impfung-zaehlt-4f92e069-9ff9-420b-a519-36e7a11aa4d2/long-covid-immunologisch-erklarbar-monozyten-im-dauer-alarmmodus-da4ae674-75c9-4c7f-b6b5-dfd7d49a4f43

https://idw-online.de/de/news865705

https://biorxiv.org/content/10.64898/2025.12.31.697156v1

https://iopscience.iop.org/article/10.1088/1758-5090/adf66c

@uniklinikum_hd
@AEKHamburg
@aerztekammerbw
@realMaskedDoc
@hausarzt
@sebastianhuter
@HanefeldMarc
@Hausarzt
@tschaefer
@thowun
@Hausarzt
@Hausarzt_Hettstadt
@navigatormedizin
@Schluderball
@walterstruhal
@jonassanoj
@KlausSchmierer

Myalgic Encephalomyelitis: International Consensus Criteria (ICC) Adult and Paediatric

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs

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