AhimsaJan 25, 2025

"The Year Ahead" - An update from #MEAction

https://www.meaction.net/2025/01/23/the-year-ahead/

Includes info on advocacy and medical education projects planned for 2025, and how you can get involved!

Did you know that a set of flash cards on IACCs (Infection-Associated Chronic Illnesses) was created for medical students as part of their #TeachMeTreatMe project?

The CDC now lists these flashcards as a resource on their website:

https://www.cdc.gov/me-cfs/hcp/toolkit/resources-for-medical-students.html

@mecfs

#MEcfs #PwME #MedEd #CDC #Education #Advocacy #Volunteer

The Year Ahead

As we embark on the new year, we are excited to share updates about #MEAction’s advocacy projects and community programs with you!  While we focus on advancing support, research, and treatments for people with ME, we’re also closely monitoring changes to public health systems under the incoming administration, and will pivot as needed to fight … The Year Ahead Read More »

#MEAction Network
Tom KindlonSep 13, 2024

#MEAction Network @MEActNet
“Dear Doctors” written by Jes Gordon and performed by
@meactionga
.
#MEAction Georgia created this powerful video and they also have a #TeachMETreatME event coming up Sept.18 at 4 pm ET. The target is nursing students and medical professionals but all are welcome! Spread the word!

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Show threadAhimsaSep 6, 2024

The 'Teach ME, Treat ME' campaign is an ongoing fixture of #MEAction

"You can still email your doctor in the U.S. and ask them to take the Mayo Clinic CME ... or share a flier with them in person."

Template for contacting doctors by email:

https://docs.google.com/document/d/15jJZ3-eHQq0pVsshfK-E0so2ucvrBWAzK8en82Xfnfo/edit

Flyer with QR code:

https://drive.google.com/file/d/1a9FELbU6Lsk5Wlx3hNh9NM26kryW8CDl/view

@mecfs @longcovid

#MEcfs #LongCovid #MedEd #CME #MayoClinic #HealthCare #TeachMeTreatME

Language to share with clinician

Dear , I’m reaching out to share a CME with you about how to diagnose and manage myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). ME/CFS is a chronic neurologic disease often preceded by infection. There has been increased interest in ME/CFS recently because of its significant ...

Google Docs
Show threadAhimsaSep 6, 2024

This campaign also expanded #MEAction's reach on social media:

"One of the most exciting aspects of our #TeachMETreatME campaign was our reach to non-followers – people who are new to #MEAction.

These may be people who have never heard of ME but are ready to learn, researchers, politicians, clinicians, med students, journalists…you never know who you might reach on social media!"

https://www.meaction.net/2024/09/04/teachme-treatme-we-cant-believe-these-numbers/

@mecfs @longcovid

#MEcfs #LongCovid #MedEd #SocialMedia

#TeachMETreatME: We Can’t Believe These Numbers

We tallied up some numbers from our #TeachME, TreatME campaign to educate clinicians and medical students about ME, and the results are fantastic! The campaign has been a herculean effort by #MEAction staff and our 16 incredible teams across the U.S and U.K., and we are beyond proud!  And, the campaign is ongoing! You can … #TeachMETreatME: We Can’t Believe These Numbers Read More »

#MEAction Network
AhimsaSep 6, 2024

Update on the "Teach ME, Treat ME" medical education campaign from #MEAction :

https://www.meaction.net/2024/09/04/teachme-treatme-we-cant-believe-these-numbers/

"We tallied up some numbers from our 'Teach ME, Treat ME' campaign to educate clinicians and medical students about ME, and the results are fantastic!

The campaign has been a herculean effort by #MEAction staff and our 16 incredible teams across the U.S and U.K., and we are beyond proud!"

@mecfs @longcovid

#MEcfs #LongCovid #MedEd #CME #HealthCare #MayoClinic #TeachMeTreatME

#TeachMETreatME: We Can’t Believe These Numbers

We tallied up some numbers from our #TeachME, TreatME campaign to educate clinicians and medical students about ME, and the results are fantastic! The campaign has been a herculean effort by #MEAction staff and our 16 incredible teams across the U.S and U.K., and we are beyond proud!  And, the campaign is ongoing! You can … #TeachMETreatME: We Can’t Believe These Numbers Read More »

#MEAction Network
Tom KindlonJul 26, 2024

A 3-minute video where numerous #MEcfs patients mention how long it took for them to get diagnosed.

#TeachMETreatME is an #MEAction campaign to educate healthcare workers about #MyalgicEncephalomyelitis by hosting Teach ME events

https://www.youtube.com/watch?v=h_PlrK0Nprg

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Why #TeachMETreatME is so important. #MillionsMissing 2024

YouTube
Show threadAhimsaJun 4, 2024

@tomkindlon

Thanks for the link, Tom. We definitely need more doctor education!

Anyone reading this can share the Mayo ME/CFS CME (continuing medical education) with their doctor(s):

https://millionsmissing.meaction.net/treatme/

Half of Long Covid patients meet ME/CFS diagnosis.

The link above is for folks in the USA, but #MEAction also did outreach in May in some other countries:

https://www.meaction.net/2024/05/17/teachmetreatme-celebrating-an-impactful-campaign/

@mecfs @longcovid

#MEcfs #LongCovid #PwME #PwLC #TeachMETreatME

Treat ME

Diagnosis and Management of ME/CFS A Concise Clinical Review in Mayo Clinic Proceedings with a one credit CME Access the Concise Clinical Review Direct Link to the CME Jump directly to the CME associated with the Concise Clinical Review Access the CME

#MillionsMissing
Tom KindlonMay 27, 2024

MEAction #TeachMETreatME: Celebrating An Impactful Campaign

https://www.meaction.net/2024/05/17/teachmetreatme-celebrating-an-impactful-campaign/

"Over the past several months, clinicians and medical students across the U.S. have attended presentations, roundtables and conferences to learn about ME/CFS – and how to take the Mayo Clinic Proceedings Continuing Medical Education course on ME/CFS."

#MEcfs #CFS #PwME @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome

1/

#TeachMETreatME: Celebrating An Impactful Campaign

We are THRILLED to share the rolling successes of our #TeachMETreatME campaign with you, as we report back on the amazing medical education events that have taken place so far – with many more to come in the upcoming months! (And don’t miss the global #MillionsMissing events later in the article!) Over the past several … #TeachMETreatME: Celebrating An Impactful Campaign Read More »

#MEAction Network
Show threadAhimsaMay 20, 2024

Here's the schedule for future "Teach ME, Treat ME" events:

https://meaction.controlshift.app/calendars/millionsmissing-2024

2/2

@mecfs

#MEcfs #PwME #LongCovid #PostCovid #MedEd #MedMastodon #MillionsMissing #TeachMETreatME

#MillionsMissing 2024

This year, we are launching a campaign to educate hospital systems and medical schools about ME/CFS by encouraging medical schools to Teach ME, and major hospitals to Treat ME. Our goal is to hold in-person events at these institutions the week of May 3rd to May 12th.

#MEAction
AhimsaMay 20, 2024

From #MEAction

"#TeachMETreatME: Celebrating An Impactful Campaign"

https://www.meaction.net/2024/05/17/teachmetreatme-celebrating-an-impactful-campaign/

"We are THRILLED to share the rolling successes of our 'Teach ME Treat ME' campaign with you, as we report back on the amazing medical education events that have taken place so far – with many more to come in the upcoming months!"

Article has lots more details along with reports of other Millions Missing events! 😁

1/2

@mecfs

#MEcfs #PwME #LongCovid #PostCovid #MedEd #MedMastodon #MillionsMissing

#TeachMETreatME: Celebrating An Impactful Campaign

We are THRILLED to share the rolling successes of our #TeachMETreatME campaign with you, as we report back on the amazing medical education events that have taken place so far – with many more to come in the upcoming months! (And don’t miss the global #MillionsMissing events later in the article!) Over the past several … #TeachMETreatME: Celebrating An Impactful Campaign Read More »

#MEAction Network