How the U.S. made organ donation an "industry":
"The worst moment of Garet Hil’s life, he once said, came when he discovered he couldn’t donate a kidney to his sick 10-year-old daughter. By the time the girl found a match a couple of months later, Mr. Hil, an entrepreneur, had drawn up plans to transform the world of living organ donation.
His organization, the National Kidney Registry, started in 2007 with a simple idea: Donors who are incompatible with sick loved ones give their kidneys to a nationwide pool. The sick patients tap into that pool of strangers to find matches more quickly.
Since its founding, N.K.R. has enabled nearly 12,000 such swaps, called paired donations, far more than any other public or private program. The organization’s focus on technology and efficiency has jolted a sluggish system, many health experts said.
But at the same time, N.K.R. has created a multimillion-dollar business with considerable power over the flow of thousands of organs, according to interviews with more than 100 people in transplant medicine and a review of business records. Many doctors told The Times the stakes of these lifesaving exchanges were too high to be managed by a private company with little government oversight.
As N.K.R. has grown, it has charged hospitals steep fees for access to its registry of donors. Some of that cost is passed on to taxpayers through Medicare.
The organization was a nonprofit for more than a decade, but during that period paid at least $39 million for technology and other services to a company owned by Mr. Hil, charity filings show. In 2023, N.K.R.’s commercial operations were sold to a new for-profit company owned by Mr. Hil, making its finances much more opaque.
About 40 percent of U.S. transplant centers work with the organization, and many have been pleased with improvements in the speed and quality of kidney matches."
I’m looking for a living kidney donor. A Christmas—or whichever holiday you celebrate—miracle to start 2026 with a potential match would truly change my life. If you or someone you know may be able to help, please consider donating or sharing this post. Every share matters. 💙
#KidneyDonor #LivingDonor #KidneyTransplant #DonateLife #NKR
Der Normenkontrollrat #NKR kritisiert in einem Positionspapier von Anfang Februar das #OZG-Änderungsgesetz. Es gibt drei Kernforderungen unter anderen Standardisierung statt Einer-für-Alle-Leistungen - die letzteren sind in komplexen Prozessen der #Hochschulen sowieso nicht umsetzbar gewesen. Die Zusammenfassung so das gesamte 12-Seitige Papier ist unter https://www.normenkontrollrat.bund.de/nkr-de/aktuelles/nkr-veroeffentlicht-positionspapier-zum-ozg-aenderungsgesetz-2163486 zu finden.
Die Frist zur Umsetzung des Onlinezugangsgesetz #OZG ist mit Ende 2022 abgelaufen. Es ist inzwischen allen klar, das hier noch einiges zu tun gibt. Wieso es so schwierig war und bleibt lässt vielleicht das Wimmelbild des Nomrenkontrollrats #NKR erahnen: https://www.normenkontrollrat.bund.de/resource/blob/300864/2153732/d3c257bfba76e857770cf17227d02777/221214-nkr-wilmmelbild-data.pdf
Der Normenkontrollrat #NKR fasst in seinem Bericht zum #Bürokratieabbau die Arbeit der Jahre 2021/22 zusammen. "spürbare Entlastungen noch zu wenig erkennbar" heißt es in der Presserklärung. Im Rahmen des Bürokratieabbaus seien Gesetzespakete zur leichteren Fachkräftegewinnung und zur Beschleunigung von Planungs- und Genehmigungsverfahren angekündigt. Dies könnte Abläufe in #Hochschulen und #Universitäten entlasten. https://www.normenkontrollrat.bund.de/nkr-de/service/presse/pressemitteilungen/buerokratieabbau-in-der-zeitenwende-buerger-wirtschaft-und-verwaltung-jetzt-entlasten-2151124
VoidedMike
Miguel Afonso Caetano
E(Gov)vonne 💻🕵️♀️🚀@14FKITPLR
P. Onderscheka
KU-bwUni.digital