Tim StreetDec 19, 2023
NICE TA943:<br>Hybrid closed loop systems for managing blood glucose levels in type 1 diabetes. What you need to know.
NICE released their technology appraisal guidance for Hybrid Closed Loops today. You can find it here: https://www.nice.org.uk/guidance/ta
https://www.diabettech.com/nice-guidelines/nice-ta943hybrid-closed-loop-systems-for-managing-blood-glucose-levels-in-type-1-diabetes-what-you-need-to-know/
#HybridClosedLoop #NICEGuidelines #HybridClosedLoop #Implementation #NICETA943
ColleenSteckelAug 15, 2023

News

Putrino Lab in New York City is looking for patients diagnosed before 2020 with “ME/CFS” to participate in research.

UK Government is asking for input on the recently published Interim Delivery Plan for ME/CFS.

https://colleensteckelmeiccinfo.substack.com/p/news-2023-august-14
#MyalgicEncephalomyelitis #MEcfs #niceguidelines #PwME #SevereME

News: 2023 August 14

Patient participation requested in NY City & UK

View from the Trenches of Myalgic Encephalomyelitis
ahimsaJul 3, 2023

Latest post from The Science Bit by Brian Hughes

“A science that does not allow opposing opinions abolishes knowledge.” Er, kind of

https://thesciencebit.net/2023/07/03/a-science-that-does-not-allow-opposing-opinions-abolishes-knowledge-er-kind-of/

@mecfs

#MEcfs #PwME #PEM #NICEguidelines #MyalgicEncephalomyelitis

"A science that does not allow opposing opinions abolishes knowledge." Er, kind of

Colleagues and I have responded to a paper in Der Nervenarzt, the leading German neurology journal, pointing out various reasons why its “overview” of evidence-based approaches to ME/CFS treatment lacked, well, evidence. Our critique can be read in full in English via the following Tweet (kudos to @AnilvanderZee): In summary, […]

The Science Bit
Show threadEmma BeeJul 2, 2023
@s4me
Too much / so much info! Especially liking the myth busting talk by Prof Brian Hughes with its wide ranging big hits on anti-NICE, anti-science, conflicts of interest, embarrassment, philosophy and more in the #MECFS world of #NICEguidelines #LongCovid #CBT #GET #PEM amazing how many of these tangles I'm exposed to as a patient navigating a challenged system!
https://youtu.be/IM6x7MbQwOA
Session 4 - Getting it Right: Addressing Myths about the 2021 NICE Guideline for ME/CFS

YouTube