LoriPlungFeb 7, 2023

Birthdays are special-59 years and counting🥳

Thanks to family & friends for making me feel special!

8+ weeks post-op and waking up stronger everyday!

💜 Take one day at a time

💜 Enjoy the big and little wins

💜 Be kind to yourself

💜 YOU ARE NOT ALONE!

#IBDVISIBLE #GRATEFUL #THANKFUL #CROHNS #GASTRODON

JoshuaDec 7, 2022
A friend gave this pin to me yesterday as I head towards my 20th surgery in 10 yrs. IBD isn’t a degenerative disease or a terminal illness, but can bring you to the brink over and over. If you have Crohn’s or UC, this is for you 💪🧘‍♂️🥷
#CrohnsAndColitisAwarenessWeek #IBDvisible
Sarah May Dec 7, 2022
Day 6 of #CCawarenessWeek, I skipped days 4 and 5 because I had a fun intestinal flu which has triggered a #CrohnsDisease flare-up. I feel like shit. Crohn's Disease affects my mental health because it is difficult to live with chronic pain, sometimes I say to myself, 'I don't want to live like this.' Because it's not just the intestinal pain, it's the arthritis and the exhaustion. I was thinking about going back to uni for a Master's degree and wonder if it is even possible. Anyway this disease sucks and there is no cure and I am at a higher risk of colon cancer. Apparently this intestinal flu is going around so I am not looking forward to people saying, 'I had intestinal flu for 2 days, now I know how you feel.' You don't. You get to go on with your normal life. I don't. Also assisted suicide is not legal in Italy and thanks to the Vatican it probably never will be. #IBDvisible
Sarah May Dec 5, 2022

Day 4 of #CCawarenessWeek Let's talk about diet. If you have Crohn's or Colitis I highly suggest starting with an elimination diet to see what are your triggers. 90% of the time it's going to be dairy, high fat animal products. But everyone is different. For me, eating a high fiber diet with no animal fat or protein has been best. And variety is key. It's not just oatmeal and some psyllium in the morning. The more variety of plants one eats, the healthier the gut biome. When I started eating like this, it seemed counterintuitive to eat MORE fiber, but it has been a lifechanger. Read 'Fiber Fueled'

One thing that always bugs me is when people without IBD give me dietary suggestions, or judge me for enjoying wine or a coffee. Please don't make suggestions, we are already aware of whatever 'study' you read about in Vogue or USA Today. We read the medical journal. Don't mansplain my disease to me, also don't suggest a gluten-free diet. #CrohnsDisease #IBDvisible #FiberFueled

Show threadLoriPlungDec 4, 2022
@catisf Hi Catarina, thanks for sharing your #IBD story! I am so happy to hear that you are responding well to your medication and feeling well. That’s the best way to make #IBDVISIBLE! You are right- IBD can come in many different forms and its easy to go down the rabbit hole on the internet and see only the worst. There are many people out there in remission and feeling well! Thanks for highlighting this in your post! 💜
LoriPlungDec 3, 2022

Today is Day 3 of Crohn's and Colitis Awareness Week!

I've chosen to make IBD visible by sharing a photo of the completion of my 10-hour TPN infusion.

TPN stands for total parenteral nutrition. It supplies me with all the nutrients my body doesn't absorb due to my short gut. It keeps me hydrated and feeling well.

This is how I gratefully begin every day!
IBD Can't Stop Me!!!!

#ccawarenessweek #ibdvisible #crohnsdisease #TPN
#ShortBowelSyndrome #grateful #Gastrodon #IBDdon

LoriPlungDec 2, 2022

Today is day two of Crohn’s and Colitis Awareness Week.

I'm proud to support and advocate for my fellow IBD Warriors and make IBD VISIBLE!

Who’s with me?

#IBD #IBDVISIBLE #Gastrodon #IBDdon #crohns #UlcerativeColitis #IBDWarriors #ccawarenessweek

Sarah May Dec 1, 2022
It's IBD awareness week and this is #MyIBDstory
I was diagnosed with #CrohnsDisease in 1999, but had symptoms for four years prior. My #MisognistDoctor (It's very common in medicine) prescribed Prozac to me for years when I would go in with symptoms like explosive bloody diarrhea, extreme abdominal pain, arthritis, and long term fevers. He diagnosed me with 'hysteria' and depression. I almost died of sepsis when I went to the ER in the worst pain of my life with a perforated bowel. If he had just referred me to a GI I may have had better treatment and an earlier diagnosis. There are millions of us living with an #InvisibleDisability and #ChronicPain but it doesn't define me. I am still a person who happens to live with an uncurable disease that impacts my life every day. Over the next week I plan to share my story to raise awareness. #CCawarenessWeek #IBDvisible
LoriPlungNov 23, 2022

It’s that time of the year again!

Crohn’s and Colitis Awareness Week
12/1 to 12/7

Let’s make #IBDVISIBLE and help all #IBDWarriors feel seen and heard!

#Gastrodon #IBD #crohns #UlcerativeColitis

shannon harveyNov 19, 2022

Hi 👋🏻 I’m a researcher, mostly on relationships and family violence. I lead a research team for a nfp and am about to start my PhD at UNSW, interrogating the gender binary in FV policy and practice.

I’m disabled, bi+ and genderqueer, and a White settler in “Australia.” I’m a parent of a small child. That stuff informs how I think, but also, identity shifts.

#Introduction #Research #SocialPolicy #Health #Disabled #ChronicIllness #IBDVisible #Queer #Gender #Trans #PhD #CoDesign