@oldladyplays A friend who has ME/CFS managed to catch the last half of my choirโ€™s livestream. She was so happy that more of the choristers were wearing N95 or similar masks, including at centre stage and in smaller ensembles, than the previous few concerts. #DisabledJoy

@oldladyplays
A friend and I (we're both disabled by chronic illness) were able to visit the Crystal Springs Rhododendren Gardens last week. It's rare when we're both well enough to do something together.

No photos, but it was lovely! So many flowering trees/plants!

https://csrgpdx.org/

My husband and I have an annual pass but for certain groups (eg, folks on SNAP EBT) the garden has "pay what you wish" admission:

https://csrgpdx.org/community-access-program

#DisabledJoy #PDX #Portland #Gardens

Crystal Springs Rhododendron Garden

Voted a Top 5 Garden in the U.S., Crystal Springs is a sanctuary of tranquil beauty for the wellbeing of all.

Crystal Springs Rhododendron Garden

I am having a painful day.

Would you kind folks, in the next 24 hours or so, tag me on a post you make about the last moment (or much longer?) you had or saw some #TransJoy ? Or #NBJoy ? Or #AgenderJoy ? Now you see why I'm asking? Too many possible sources. #BlackJoy or #DisabledJoy or #DeafJoy or so many others.

If you've a marginalised identity and found joy recently, tell me what it was. Don't be afraid to say it was about discomfiting your oppressor. Speak your joy. Doesn't matter if I share an identity with your oppressor, I don't do defensive. If I've done what you say, I'll apologise and/or accept responsibility for my failures and misdeeds and privilege. If I haven't, then I will share your victory joy, bc any oppressor is too many.

I just want to hear what's bringing you joy in an identity important to you?

Thread RULE: if it isn't about you, don't make it about you. You need to defend yourself for some reason? This is neither time nor place. Joy only. You wanna hurt someone? Not here. This is a braver space than that.

What's your joy, if you want to share?

๐ŸŒฑ The tomatoes are planted. The cryptid survived. Barely.
New Saturday Health Update: gardening, disability, Luna chaos & small freedoms. ๐Ÿพ๐Ÿ’œ
linktr.ee/skylanarissa
#DisabledAuthor #ChronicIllness #DisabledJoy #HealthUpdate #Gardening

http://thecrippledcryptid.com/2026/05/23/saturday-health-update-gardening-ghosts-food-bank-days-small-freedoms/

Saturday Health Update: Gardening, Ghosts, Food Bank Days, & Small Freedoms

The tomatoes are planted. The cardinal came by. The Jeep is running. The cryptid is still here. This weekโ€™s Saturday Health Update talks gardening, disability, food banks, found family, soreness, sโ€ฆ

The Crippled Cryptid.

Itโ€™s MAR10 ๐Ÿ„
Controllers out, mushrooms on the menu, Luna supervising, and someone is definitely about to yell โ€œTASTE BEES.โ€
Bowser vs Peach. Mario Party โ†’ Mario Kart Wii.
Chaos is the point. ๐ŸŽฎโœจ
#MAR10Day #MarioDay #Nintendo #MarioParty #MarioKart #CozyGaming #DisabledJoy

https://dreamingofdragonscom.wordpress.com/2026/03/10/mar10-madness-a-full-mario-day-at-the-cryptids-den-%f0%9f%8d%84/

MAR10 DAY in the Cryptidโ€™s Den

Itโ€™s MAR10! Mario Day is here, and the Den is officially a chaotic, mushroom-filled battlefield. Controllers ready, coins counted, and snacks preppedโ€”weโ€™re diving into mini-games, laughter, and mayโ€ฆ

The Crippled Cryptid.

https://www.mkuh.nhs.uk/wp-content/uploads/2022/10/Women-with-Disabilities-and-Special-Needs-Guideline.pdf "Appendix 1: MOTHERS WITH LEARNING DISABILITIES GUIDANCE TOOL
V
Value family โ€“ Involve individuals who best know the woman with learning disabilities as they can provide additional information that may be helpful to the decision-making process.
A
Avoid making assumptions โ€“ Do not assume that because someone has a diagnosis of a learning disability that they cannot be good enough parents
L
Look for support โ€“ Professionals should not work in isolation and should involve learning disability services for further support and guidance.
U
Understand emotions โ€“ Take into consideration that many mothers with learning disabilities have their own anxieties and worries about motherhood and fear of judgment. Do not assume they are being difficult.
E
Establish reasonable adjustments โ€“ Professionals should put reasonable adjustments into place to ensure women with learning disabilities can comprehend and understand information to give informed consent. I.E. easy read, pictorials, large font, visual and hearing aids.

M
Mental Capacity โ€“ Do not assume capacity. In liaison with the Mental Capacity Act 2005, professionals should consider completing a Mental Capacity Assessment (MCA) to establish whether the women can give informed consent. Professionals should also consider best interest, Deprivation of Liberty Safeguards (DoLS) and involving an Independent Mental Capacity Advocate (IMCA).
E
Efficient discharge โ€“ Professionals should consider possible support that can be put into place to ensure a person-centered discharge is consolidated. Consider, access to health and additional services, transport, financial support and accommodation.

THINK... VALUE ME"

#maternity #pregnancy #ObGyn #Obstetrics #pregnant #nativity #disabled #DisabledJoy #DisabledFedi #disability #MedMastodon #med #meds #medicine #medical

Omfg. Read section 3.4 "Learning Disabilities support" on page 5. Literally everyone will be helped by these suggestions, not just diagnosed disabled people.
https://www.mkuh.nhs.uk/wp-content/uploads/2022/10/Women-with-Disabilities-and-Special-Needs-Guideline.pdf
"3.4 Learning Disabilities support
Although 7% of people with learning disabilities become parents ( Best Beginnings) the Equality Act 2010 obligates responsibility to service providers to ensure that reasonable adjustments are put into place to ensure the holistic needs of people with learning disabilities are met to the highest standards.
Remember to think VALUE ME! (Appendix 1)

1. Early intervention strategies should be considered. Ensure that the community midwife is involved and if they are under 20 consider discussion with the specialist teenage pregnancy midwife for additional support.
2. Professionals should ensure that adequate time is provided for consultations, appointments and formal discussions. Taking time to allow the woman to understand the information in
order to make an informed decision.
3. Professionals should ensure that reasonable adjustments are put into place to aid with understanding. Including: easy read, pictorials, large font, visual and hearing aids.
4. Abilities led practice rather than inabilities led practice. Professionals should avoid making assumptions based on a diagnosis of a learning disability as often mothers will have their own anxieties, fears and worries regarding motherhood.
5. Avoid assuming that mothers are being difficult. Consider other possible reasons such as the environment, loud noises, bright lights (especially if they have a dual diagnosis of learning disability and ASD), sensory needs, stress and anxiety. Provide a side room if possible."

#maternity #pregnancy #ObGyn #Obstetrics #pregnant #nativity #disabled #DisabledJoy #DisabledFedi #disability #MedMastodon #med #meds #medicine #medical

Posthumous album of singer Kara Jane released on Severe ME Awareness Day - The Sick Times

This month, on August 8, the posthumous album of a young singer was released to mark Severe ME Awareness Day. Kara Jane, from Derbyshire in the U.K., had myalgic encephalomyelitis (ME) for most of her life and died in January 2023 at just 32 years old. Despite a life of immense pain and restriction, Kara

The Sick Times - Chronicling the Long Covid crisis

Today is #SevereMEAwarenessDay . Here is the annual incredible gallery of art, writing, and video by people with severe ME/CFS

https://www.meartistsproject.com/severe-me-artists-project-2025?mc_cid=9ce95da3a4

#MECFS #MillionsMissing #ChronicIllness #DisabledArt #DisabledJoy

Severe ME Artists Project 2025

#MEAction is excited to present this year's Severe ME Artists project in recognition of Severe ME Awareness Day!

#MEAction