Mastodawn

Brian (Stuttering Loudly)May 10, 2025

COVID can affect any organ in the body, including the bone marrow It’s why #AplasticAnemia / #BoneMarrowFailure patients like Hillary and I need to take COVID seriously (TBC, Hillary didn’t get COVID and she and her family want to keep it that way)

RE: https://bsky.app/profile/did:plc:ne6c7wj3gsizqhwsr5iyuhid/post/3loqfvzyerk2h

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Brian (Stuttering Loudly)May 9, 2025

Hillary is a fellow #AplasticAnemia pt who may be relapsing 😢 Never experienced what she’s going through - I’m stable but not in remission as my White Blood Cells & platelets are very low She’s hosting a stem cell drive to find a match for a bone marrow transplant Please like & repost 👇👇👇 🧵 1/2

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Jon P Jan 1, 2023

(Also: we didn't really know much about #PNH - paroxysmal nocturnal haemoglobinuria - nor how it related to our son's #AplasticAnemia. But it's a disease, that often coincides with #AplasticAnemia, which causes the membrane of red blood cells to fail, and then the heamoglobin"falls out" into the blood stream - called #haemolysis. This website was really useful: https://my-pnh.com/pnh-resources )