| [Header image: a photo of me smiling. I am white presenting, with dark hair and reddish-brown glasses] | [Avatar image: a black cat with white whiskers' face with his derpy tongue sticking out] |
| My gastroperesis blog | http://mojovampire.com |
This will be a short update. In part, because Xena Malka is noticeably less tolerant of my arm movements than Dancer eventually became, and typing is a bit difficult right now. But also because I am tired from an extended walk around the block and apparently I have to navigate an airport in two days. … Continue reading "And Away We Go?"
This post comes to you with all of the misery that comes post vaccination, as I am suffering the impact of having had my covid and flu boosters. No regrets here, but, I am not exactly comfortable. As always, it is a good reminder of just how much more miserable I would be if I … Continue reading "The Better Option"
Experimenting is over and we have called it. My old formula was the problem. Problem solved, right? Not so quick. I emailed my new tube GI and asked her to order the new formula for me. She wrote back and asked me how much per day. I responded. And then radio silence. And as of … Continue reading "Now Comes The Fun Part"
In which Eva shares some rare, but very welcome, good news.
Hold on to your hats folks. This is a pretty big deal update. The change in formula has been absolutely transformative. I am on day 4 and I feel like me again. I spent an hour knitting yesterday and a half hour knitting today before I decided to write this post. And that was after … Continue reading "Zoomies"
Mary managed to get me an appointment with a neurologist for this coming Thursday. This was no mean feat. She couldn’t find me an appointment with one that accepts my insurance at all. When I told her we would pay out of pocket, she found only one who could see me so quickly. She said … Continue reading "Mary’s Magic"
It has been a while since my last post. Unfortunately, chronic illness can be boring. I spend my time sleeping, being bored out of my gourd (but not in a creative, let’s build a space station kind of way, but in a I’m bored, but too sick to think or read or do anything interesting … Continue reading "Damn you, Chaos!"
We are back from our travels, and it is nice to be home. But Dancer’s absence remains a keenly felt hole in my heart. I feel like I am letting his memory down by not giving him the tribute he deserves. But I am so exhausted and numb I don’t feel like I could give … Continue reading "Purgatorio"
Just got home from 5 days with 30+ family members (all in-laws). I am so deeply in spoon deficit that I am crying from sheer exhaustion. Just got a text that one of the uncles just texted positive for Covid (he is symptomatic). We were the only ones who ever masked indoors.
Now we wait to see if our precautions worked.
This is your periodic reminder that ambulatory wheelchair users exist. Many folks think wheelchairs are only for those who can't walk at all, or folks who can only take a couple steps.
Wheelchairs and electric scooters are used due to pain, weakness, balance issues, orthostatic intolerance, etc.
#Disability #Wheelchairs #DynamicDisability #ChronicIllness #MEcfs
Ahimsa