RT @IrishVasculitis: First of 3 visits yesterday to meet MEPs as part of Rare Disease Week. Thank you @SeanKellyMEP @eurordis #rarediseasemonth @rareireland #vasculitis @_ERNRITA @fairvasc #RAIN
🐦🔗: https://n.respublicae.eu/SeanKellyMEP/status/1623363436959629313
It’s #RareDiseaseMonth!
This is my first year as a double rare patient — if I were a gemstone, I would be priceless ✨
Learn more about my story by watching this news feature: https://www.fox5atlanta.com/news/georgia-grad-student-defies-medical-expectations-25-years-after-devastating-diagnosis
Linseigh Green was just 2-weeks-old when she was diagnosed with a life-threatening intestinal disease, known as necrotizing enterocolitis, or NEC. Today, the Johns Creek woman is 25 and working on her second master's degree in England.
Seán Kelly MEP
Linseigh
Caroline Lynn Kamerlin
Yan Leyfman, MD