The following hashtags are trending across South African Mastodon instances:
#Wordle
#wordle1752
#bohringopitzsyndrome
#bosawerenessday
#rarediseaseday
#geneticdisorders
#supportrarediseases
#bosfoundation
#rarediseasecommunity
#goldforbos
Based on recent posts made by non-automated accounts. Posts with more boosts, favourites, and replies are weighted higher.
𝗕𝗼𝗵𝗿𝗶𝗻𝗴-𝗢𝗽𝗶𝘁𝘇 𝗦𝘆𝗻𝗱𝗿𝗼𝗺𝗲 (𝗕𝗢𝗦) 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗗𝗮𝘆 - 𝗔𝗽𝗿𝗶𝗹 𝟲
Today, we stand together to raise awareness about Bohring-Opitz Syndrome (BOS), a rare genetic disorder affecting fewer than 200 people worldwide. BOS is caused by a mutation in the ASXL1 gene and can lead to serious health challenges including feeding difficulties, respiratory infections, developmental delays, and more.
On this day, we honor the strength of families facing BOS, support ongoing research, and educate the public and medical community to improve care and understanding.
Join us in spreading knowledge and hope for those impacted by BOS.
💛 Wear gold and denim today to show your support!
#BohringOpitzSyndrome #BOSAwerenessDay #RareDiseaseDay #GeneticDisorders #SupportRareDiseases #BOSFoundation #RareDiseaseCommunity #GoldForBOS #DenimForRare #FightBOS #SCABPharmacy
The #EU4Health Joint Action JARDIN is supporting the integration of European Reference Networks into national healthcare systems, further advancing the fight against rare diseases by bringing together multinational expertise.
The #EU4Health Joint Action JARDIN is supporting the integ...
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https://nitter.net/EU_HaDEA/status/2027700320650887402#m
On Rare Disease Day, HaDEA spoke with representatives of the JARDIN Joint Action (JA), Prof. Till Voigtländer and Dr Ursula Unterberger. They explained how the JA is strengthening the work of European Reference Networks (ERNs) by supporting their better integration into healthcare systems in Europe.
Today is #RareDiseaseDay.
Did you know that 300 million people worldwide live with a rare disease? Yet, the development of therapies for rare diseases continues to face persistent challenges.
Find out how #HorizonEU projects unlock treatment discoveries: https://hadea.ec.europa.eu/news/rare-disease-day-2026-discover-horizon-europe-projects-advancing-research-and-innovation-rare-2026-02-28_en
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https://nitter.net/EU_HaDEA/status/2027670110203514923#m
Rare diseases affect over 300 million people worldwide, yet only 6% currently have an approved treatment option. To address this challenge, projects funded under the Horizon Europe ‘Health’ programme conduct research to develop much-needed treatments.
“The growing role of parents as advocates and innovators, the case for a national rare disease champion, and why a more joined-up approach across government, regulators, industry and charities is essential to delivering faster diagnoses and access to life-changing therapies.”
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