Today is World Parkinson’s Day. I have looked on Mastodon for fellow Parkies and found almost none. If you suffer from Parkinson’s or are a caregiver and want to chat, feel free to add me. I am an early-onset and my father-in-law was diagnosed just after me. Awareness is key to working on treatments and someday a cure!

(I just wish “our” color wasn’t orange, lol!)

#WorldParkinsonsDay #ShareYourSpark #Parkies

@AncTreat5358

I haven’t found a good Parkinson’s hashtag but have been looking for a group too. There are message boards at the Michael J. Fox Foundation but wondering where the Mastodon peeps are. Replying to boost visibility.

I wish you all the best with your health journey!

#Parkinson’s #PD #Parkies #MovementDisorders

If anyone reading this has worked for the US National Park Service / BLM / other public land agencies, and has struggled with housing, Molly McCluskey is working on a piece for Sierra magazine and could use your input. It's a big issue for park employees, so I hope as many as possible talk to her.

#parkies #PublicLand #housing

(LinkedIn request) https://www.linkedin.com/posts/mollyemccluskey_attn-current-and-former-parkies-im-writing-activity-7168270943818125313-glex?utm_source=share&utm_medium=member_android

This is my #YOPD journey. I’d love to hear others’ journeys.

https://social.horrorhub.club/@grryboy/109342691583773974
#Parkinsons #PwP #DBS #Parkies

@trekreadyhimalayas

Good Morning, #Mastodon !!!

For #FollowbackFriday I'm looking for people who want to be active members of #horrorcommunity #horrorfam #horrorfamily #mutantfam in discussion of #horror #horrorfilms #fiction #writing #horrorart etc.

Also interestred in #scifi #sciencefiction #Parkinsons #YOPD and my #Parkies #PwP and #UnixPorn

I'm not concerned with quanity of followers but quality. For the like minded #followandboost and I'll do the same.

A bit about my #Parkinsons for #Parkies and others:

I was diagnosed with #YOPD in 2011, by 2020 meds were maxed, movement, balance, speech, rigidity and dystonia made it difficult to enjoy life. People think tremor; it’s the least of problems.

#DBS was a relief. Brain surgery is scary. I had to be conscious, but it was'nt painful. Moving the probes and adjusting power changed my me from complete constriction to rubber. But we found a happy medium in each limb.

Each #PwP is different.