31 Days of EDS & HSD – Day 31: Thank You For Raising Awareness

Thanks for letting me blather. This month I am participating in 31 Days of EDS and HSD social media challenge and the Walk and Roll challenge to raise money for the Ehlers-Danlos Society. You can donate on Fundraise or Facebook. You can read all my posts on this topic here. #MyEDSChallenge

https://competentgirl.wordpress.com/2025/05/31/myedschallenge31/

31 Days of EDS & HSD – Day 31: Thank You For Raising Awareness

Thanks for letting me blather. This month I am participating in 31 Days of EDS and HSD social media challenge and the Walk and Roll challenge to raise money for the Ehlers-Danlos Society. You can d…

The Adventures of Competent Girl

31 Days of EDS & HSD – Day 26: Words To My Younger Self

"Don't Z-sit." "Yes, you are really injured." This month I am participating in 31 Days of EDS and HSD social media challenge and the Walk and Roll challenge to raise money for the Ehlers-Danlos Society. You can donate on Fundraise or Facebook. You can read all my posts on this topic here. #MyEDSChallenge

https://competentgirl.wordpress.com/2025/05/26/myedschallenge26/

31 Days of EDS & HSD – Day 26: Words To My Younger Self

“Don’t Z-sit.” “Yes, you are really injured.” This month I am participating in 31 Days of EDS and HSD social media challenge and the Walk and Roll challenge to raise m…

The Adventures of Competent Girl

31 Days of EDS & HSD – Day 7: My Theme Song

This has way more to do with being a queer enby than EDS, but this is my anthem lately. RealXman - Up On Game This month I am participating in 31 Days of EDS and HSD social media challenge and the Walk and Roll challenge to raise money for the Ehlers-Danlos Society. You can donate on Fundraise or Facebook. You can read all my posts on this topic here. #MyEDSChallenge

https://competentgirl.wordpress.com/2025/05/07/myedschallenge7/

31 Days of EDS & HSD – Day 7: My Theme Song

This has way more to do with being a queer enby than EDS, but this is my anthem lately. RealXman – Up On Game This month I am participating in 31 Days of EDS and HSD social media challenge an…

The Adventures of Competent Girl
Ruff Magnolia Garden/ Ehlers-Danlos Society Walk and Roll
https://competentgirl.wordpress.com/2025/05/04/myedschallengewalkroll1/
#MyEDSChallenge
Ruff Magnolia Garden

Strava plot of my wheel around Ruff Magnolia Garden Today I went for my first wheel toward my 1 mile goal for the Ehlers-Danlos Society Walk and Roll goal. I went to Ruff Magnolia Garden in Springf…

The Adventures of Competent Girl
31 Days of EDS & HSD – Day 4: Light It Up Orange

My Facebook Profile Photo with an Orange Awareness Month Banner I don’t know of anywhere in Oregon that is doing the Light It Up Challenge, I know that in Eugene we are continuing our members…

The Adventures of Competent Girl
31 Days of EDS & HSD – Day 3: Misconceptions I’ve Heard

One misconception I’ve heard is that EDS is just about the joints or about dislocating joints. Collagen is part of the entire body. For instance, due to weak collagen, my feet have gotten wid…

The Adventures of Competent Girl
31 Days of EDS & HSD – Day 2: My Diagnosis Journey

For many people with EDS, getting diagnosed is a fraught experience. That isn’t really my experience. That’s not to say that early intervention wouldn’t have been helpful, but kid…

The Adventures of Competent Girl
31 Days of EDS & HSD – Day 1: Meet Me!

Me in my wheelchair at Finley Nation Wildlife Refuge I’m Juli and I have hEDS. I used to say that my first EDS related injury was when I hurt my hips following along with the yoga show on TV …

The Adventures of Competent Girl

New research suggests genetic identification for #eHDS -- #MTHFR.

https://scitechdaily.com/bending-over-backwards-vitamin-deficiencys-surprising-role-in-double-jointedness-and-eds/

I have known since 2008 that I have this mutation because it caused such difficulty in my sister's pregnancy. To know that this may be the new diagnostic tool for #HypermobileEhlersDanlosSyndrome gives me great hope.

#HSD #Genetics #EhlersDanlosSyndrome #ChronicPain #MyEDSChallenge #MyHSDChallenge #TogetherWeDazzle #ZebraStrong

Bending Over Backwards: Vitamin Deficiency’s Surprising Role in Double-Jointedness and EDS

Scientists have linked hypermobility and related disorders to a folate deficiency caused by a genetic variation, offering new diagnostic methods and treatment possibilities with methylated folate. Tulane University researchers have discovered a possible genetic cause for hypermobility (commonly k

SciTechDaily
May is Ehlers Danlos Awareness Month and I am raising money by walking or biking each day this month for my daughter and granddaughter. #myedschallenge #eds #heds #findacure