Mastodawn

Went in for one blood test.
Left with three.
A1C, Vitamin D, Vitamin B.
Nothing says chronic illness like “since you’re already here.”
#chronicillness #livedexperience #patientvoice

T.W.S.C.I.Dec 29

Doctor: “It’s uncommon.”
Me: gestures vaguely at entire life since diagnosis
Sure. Very uncommon.
#sarcoidosis #patientvoice #chronicillness #medicalgaslighting

T.W.S.C.I.Dec 29

Living with sarcoidosis means explaining it, spelling it, and then explaining it again—but slower. #sarcoidosis #chronicillnesshumor #patientvoice

T.W.S.C.I.Dec 28

Your experience with sarcoidosis is real—even on days when scans look “fine” and words fall short. Trust yourself. You know your body better than anyone.
Still here. Still trying.
#sarcoidosis #chronicillness #trustyourbody #patientvoice

T.W.S.C.I.Dec 28

Herbal medicine ≠ TikTok wellness hacks.
Chronic illness deserves research, not detox conspiracies filmed under a ring light.
#chronicillness #sarcoidosis #heartfailure #scienceoverhype #patientvoice
https://www.buzzsprout.com/2548730/episodes/18171359

When TikTok “Doctors” Go Rogue: Real Healing Isn’t a Trend - Thoughts While Surviving Chronic Illness: Navigating Life With Sarcoidosis

Herbal and homeopathic medicine can absolutely help chronic illness like sarcoidosis and heart failure—but TikTok wellness hacks and unverified “miracle cures” are another story. In a world where influencers push detoxes, conspiracies, and half-ba...

Buzzsprout

T.W.S.C.I.Dec 28

Living with sarcoidosis means waking up every day and choosing to keep going—sometimes loudly, sometimes quietly. Both count. You’re still here. That matters more than you know.
Still here. Still trying.
#sarcoidosis #chronicillness #youareenough #patientvoice

Mark Sep 18

Healthwatch’s abolition silences patient voice, leaving weaker accountability. Roy Lilley argues this undermines trust, replacing collective influence with hollow consumer choice. Patients want voice, not vouchers. #NHS #Healthwatch #PatientVoice

https://thetrainingnet.com/voucher/