Went in for one blood test.
Left with three.
A1C, Vitamin D, Vitamin B.
Nothing says chronic illness like “since you’re already here.”
#chronicillness #livedexperience #patientvoice
Doctor: “It’s uncommon.”
Me: gestures vaguely at entire life since diagnosis
Sure. Very uncommon.
#sarcoidosis #patientvoice #chronicillness #medicalgaslighting
Living with sarcoidosis means explaining it, spelling it, and then explaining it again—but slower. #sarcoidosis #chronicillnesshumor #patientvoice
Your experience with sarcoidosis is real—even on days when scans look “fine” and words fall short. Trust yourself. You know your body better than anyone.
Still here. Still trying.
#sarcoidosis #chronicillness #trustyourbody #patientvoice
Herbal medicine ≠ TikTok wellness hacks.
Chronic illness deserves research, not detox conspiracies filmed under a ring light.
#chronicillness #sarcoidosis #heartfailure #scienceoverhype #patientvoice
https://www.buzzsprout.com/2548730/episodes/18171359
When TikTok “Doctors” Go Rogue: Real Healing Isn’t a Trend - Thoughts While Surviving Chronic Illness: Navigating Life With Sarcoidosis

Herbal and homeopathic medicine can absolutely help chronic illness like sarcoidosis and heart failure—but TikTok wellness hacks and unverified “miracle cures” are another story. In a world where influencers push detoxes, conspiracies, and half-ba...

Buzzsprout
Living with sarcoidosis means waking up every day and choosing to keep going—sometimes loudly, sometimes quietly. Both count. You’re still here. That matters more than you know.
Still here. Still trying.
#sarcoidosis #chronicillness #youareenough #patientvoice

Healthwatch’s abolition silences patient voice, leaving weaker accountability. Roy Lilley argues this undermines trust, replacing collective influence with hollow consumer choice. Patients want voice, not vouchers. #NHS #Healthwatch #PatientVoice

https://thetrainingnet.com/voucher/

Interesting patient perspective on an individual with multiple drug intolerances (including #hypertension - something we face a lot) www.bmj.com/content/390/... in the @bmj.com #MedSky #PatientVoice

Living with an intolerance to ...
Facing kidney failure as a child: www.ajkd.org/article/S027... in @ajkd.bsky.social Read the whole thing (should be #OpenAccess free in a few days) #NephSky #PatientVoice