Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of May 11 - 17.
https://www.s4me.info/threads/news-in-brief-may-2026.50158/#post-693584
Highlight: Major funding secured for Sequence ME & Long Covid! (DecodeMe project)
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
Check out the latest News in Brief (May 4 - 10) from the Science for ME forum. This is a weekly summary of ME/CFS and Long Covid news including research, advocacy, and coming events.
🚨 May 12, International ME/CFS Awareness Day, is tomorrow!
https://www.s4me.info/threads/news-in-brief-may-2026.50158/#post-692137
Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of May 4 - 10:
Topics:
News, advocacy, articles
Coming events
Research news & commentary
Published research
https://www.s4me.info/threads/news-in-brief-may-2026.50158/#post-692137
RE: https://mastodon.social/@patientled/116524073747246614
Folks with Long COVID in or near NY, NY - maybe this is of interest?
Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Apr. 27 - May 3:
Topics:
News, advocacy, articles
Coming events
Research news & commentary
Published research
https://www.s4me.info/threads/news-in-brief-april-2026.49767/#post-690568
From the US
Interdisciplinary Pediatric Long-COVID Care: A Descriptive Study of Interventions and Health-Related Quality of Life
https://academic.oup.com/ofid/article/13/4/ofag155/8651135
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#LongCovidKids
The case for routine patient review in long COVID research
https://www.thelancet.com/journals/laninf/article/PIIS1473-3099(26)00134-9/abstract
Screenshot from latest Science for ME weekly update
#LongCovid @longcovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
A short video (3 minutes) on actions listed in the 2026 Millions Missing toolkit, starting with low energy items.
Short description: Animated cat, wearing a purple overcoat and black bowler hat, speaks directly to camera.
https://www.youtube.com/watch?v=cPb9wOkRxMM
Note: Video is from Instagram, can't tag MEActNet here (but you could ask #MEAction to get a Fediverse account😉)
Direct link to toolkit:
#MillionsMissing #MEcfs #Pwme #LongCovid #PwLC #Medicaid #FrailAndFurious
RE: https://disabled.social/@ahimsa_pdx/116495749131742719
Update from #MEAction:
"How to Participate in #MillionsMissing 2026"
https://www.meaction.net/post/your-story-can-change-everything
Some actions listed:
- Share your story on social media from May 9 to 16
- Submit your story to #MEAction's Story Bank
- Help protect Medicaid by signing the letter sent to HHS Director
- Register to join the event in Washington D.C. on May 12
#MEcfs #PwME #LongCovid #PwLC #ChronicIllness #Disability #Medicaid #FrailAndFurious
Study from the UK 🇬🇧
Impaired peripheral oxygen delivery during submaximal exercise in adults with long COVID
https://physoc.onlinelibrary.wiley.com/doi/10.14814/phy2.70873
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
Science for ME Forum
Ahimsa
datum (n=1)
Tom Kindlon