Hey folks   

This isn't any of the posts we've been trying to write for ages, but haven't had sufficient spoons, executive function, emotional regulation, or uninterrupted time (particularly from unexpected daily life events) to write 😅🥺  

No: instead, this is just something adjacent to some of these things, which has been increasingly on our mind recently... particularly as it feels like we've been seening significantly more posts by other trans+ people we follow on fedi, as well as other places, discussing topics like:

  • Their overall worsening feelings of gender dysphoria, or feeling like they're making no progress towards their own transition goals.
  • Increasingly yearning for a particular gender-affirming surgery, especially if it either is -- or feels like it is -- impossibly far away or actually impossible.

  

In light of our own issues with the NHS, we did get to the point where we did a post asking folks to remember to use CWs for such posts, as even with lots of filters, we couldn't keep up 🥺😔 (In a later post, we advised that we had changed our filters back from hide completely to hide with a warning, but we're still having to filter out a lot.)

Anyway, we're getting off track again. (Today has been another of those kinds of days.)

We've been thinking a lot recently about how it would almost be easier for us if we were a binary trans+ woman with stereotypical transition goals that align with the binary expectation of the NHS and other medical systems 😔

If we had had noticeable, intense genital dysphoria in the way that they expect all trans+ folks to have, then maybe we'd've been willing to compromise over surgeon and techniques in order to get some form of genital reconfiguration surgery (GRS), and we'd've been able to progress there.

However, because we don't feel that way, could not mask our real feelings, and would not be comfortable with the limited options offered, we're now stuck in a limbo where we may basically get nothing through the NHS whatsoever.

Just to clarify, we're acutely aware just how completely cursed this line of thinking is, and how much dysphoria -- especially around genitalia -- can be debilitating for many 🥺😔

It isn't a matter of anybody having it easier or worse: everybody should be able to get their healthcare needs met. However, unless you "play the game" and "play along", you won't get anything.

But yeah... this is the dumb situation we're in.

Our dysphoria doesn't match the NHS's binary model, so we're now just waiting to hear back about how we go about complaining about pretty much everything and trying to get somewhere.

We won't though, sadly. It'd take a secular miracle for somebody to actually show a single iota of care for us as an actual person / entity.

We feel bad for the complaint handler, as given the way she's replied, we think she actually still cares 🥺😔

That job will break her if she doesn't leave it.

We've already had our request for voice feminisation surgery (VFS) declined, and we haven't even tried to get them to hear us out over facial feminisation surgery (FFS), as they'd laugh us out the door.

If you want to know how cruel the NHS system is, just read part of the below in relation to the first rejected VFS individual funding request (IFR):

The following criteria were used when considering whether there were exceptional clinical circumstances relating to your patient to support the IFR:

* Are there any clinical features of the patient’s case which make them significantly different to the general population of patients with the condition in question at the same stage of progression of the condition?

AND

* Would the patient be likely to gain significantly more clinical benefit from the requested intervention than might be normally expected for the general population of patients with the condition at the same stage of the progression of the condition?

Your application was triaged by the Funding Team, and it was agreed that the information provided to support this IFR does not demonstrate clinical exceptionality.

Regrettably, we cannot approve your funding request as there is no evidence to show this patient is likely to gain significantly more clinical benefit from Glottoplasty surgery than might be normally expected for the general population of patients with the condition or circumstance i.e. gender dysphoria and neurodiversity. Unfortunately, we are not able to take purely psychological issues into consideration.

However, if there is any further information you have to demonstrate exceptionality, we would be happy to reconsider this request.

Yeah...

#GenderDysphoria #GenitalDysphoria #GenitalReconfigurationSurgery #GRS #GenderAffirmingSurgery #GenderAffirmingSurgeries #trans #transgender #enby #NonBinary #queer
#LGBTQ+ #LGBTQIA+ #NHS #EOEGS #NCTH #FuckTheNHS #VFS #FFS #IFR

SleepyCatten (@[email protected])

Content warning: Polite request for any trans+ folks on fedi who post about planning for, getting, or recovering from any gender-affirming surgeries, or thoughts about getting them thereafter, in light of the effect it can have on those who cannot get them

The Cult of Shiv

Hey folks

Been trying and failing to write this post for a few days now.

Mood, health, energy, time, chores, obligations, and responsibilities kept getting in the way.

So, we're gonna summarise everything as much as we can, and try and limit our emotional response to it.

Important context

  • We have been trying to get meaningful gender-affirming healthcare through the NHS since April 2021.
  • We had tried to get clear information on surgery options, particularly genital reconfiguration surgery (GRS) options, for years, but never got clear options: only vague wording.
  • We were almost certain sure that no form of penile-preserving vaginoplasty would be available, so we narrowed our choices to peritoneal pull-through (PPT) vaginoplasty or a bilateral orchidectomy.
    • We didn't and don't want penile inversion vaginoplasty (PIV) or vulvoplasty (aka zero-depth vaginoplasty).
  • We finally passed all hurdles through an NHS pilot scheme (East Of England Gender Service; EOEGS) in late 2024.
    • This is under the Nottingham Centre for Transgender Health (NCTH).
  • Our surgery referral was only sent over to a private hospital by the NHS Gender Dysphoria National Referral Support Service (GDNRSS) in late 2025.
  • We had an initial assessment meeting with that private hospital this week.

Information from meeting

  • The NHS will not fund PPT vaginoplasty unless there's medically no other option (i.e., last resort).
    • Basically only if you've got "inadequate donor site skin" for other methods.
  • Despite offering PPT privately, the hospital considers PIV the "gold standard", and was heavily biased against PPT, advising that PPT:
    • "is not self-lubricating";
    • has "more granulation tissue" and "more complications associated with it";
    • typically has a "worse surgical outcome";
    • "turns into skin" in the long run;
    • is more likely to "stenose" and "scar".
  • No form of penile-preserving vaginoplasty is available (as we thought).
  • The NHS will not fund the hospital to do standalone bilateral orchidectomies for any referrals sent to them via GDNRSS.
  • The specific (and only surgeon) we had asked to be referred to did not pick up our referral.
    • Worse, a surgeon we absolutely do not want to go anywhere near picked up our case!!!
  • We discovered that NHS gender clinics sit in on their Multi-Disciplinary Team (MDT) meetings to discuss patients' surgery requests!!!

Outcomes for us

After considering options and offers, we resignedly sent an email to the private hospital, requesting that they refer us back to GDNRSS, advising that:

  • The GRS options were explained to us, but we did not find them suitable.
  • The surgeon who offered to take our case was not suitable.
  • We wish to discuss next steps with the GDNRSS.

Sadly, an individual funding request (IFR) will almost-certainly be required, but the gender clinic has previously refused to submit any IFRs for us, so we're kinda very likely to be screwed here.

For anybody not aware, IFRs get submitted to your local integrated care board / system (ICB/ICS) in England. They'll only agree to fund something if:

  • There are "exceptional clinical circumstances" to support the request.
  • The IFR clearly demonstrates "clinical exceptionality".

Although technically an NHS GP can submit an IFR, unless it comes from the NHS gender clinic with a detailed explanation of why they can't / won't fund the surgery and why it's necessary, the local ICB funding team will just reject the request.

This is sadly a major issue for us, as we've raised multiple complaints against our gender clinic for their awful service (or rather lack thereof) and they've stopped responding to any of our emails now, so there's little to no chance of them even agreeing to submit an IFR for us, let alone doing one with a decent chance of being accepted.

We don't know what the current price is for a bilateral orchidectomy, but it was up to about £6k a year or two back, so it's probably more like £7K to £8K now 

In other words, nothing we could afford privately any time in the next decade.

So... yeah 🙃

If you wondered why our posts have been a little bit more bleak the last few days, this is among the reasons 😅 (There are sadly many other things contributing too.)

It's our own fault really for even trying to go through the NHS route and thinking that maybe, just maybe, they wouldn't continually fuck us around.

Anyway, that's the toot.

#NHS #NHSEngland #EOEGS #NCTH #trans #transgender #NonBinary #enby #FemEnby #GRS #GAS #vaginoplasty #orchidectomy #GenderAffirmingHealthcare #IFR #ICB #ICS #FuckTheNHS #FuckTheUK #DesegregateTransHealthcare #TransRights #TransRightsAreHumanRights #LGBTQ+ #LGBTQIA+

DM: "That ends the NHS's turn. Okay. Evie, you're next."

Evie: "Right. Well, first, I would like to rage...."

DM: "But... you're not a barbarian...?"

Evie: "No, I just mean scream into the void in pure rage and frustration at the NHS."

DM: "Okay... erm... roll for... performance...?"

Evie: "Natural 20, but -2. 18."

DM: "Okay. Go ahead."

Evie: inhales deeply "AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH!!!!!!!!!"

DM: "You feel the growing irritation and akwardness of the NHS, leading to the call being terminated. But you take... 10 points of psychic damage in recoil and are now prone. It also automatically ends your turn."

#NHS #NHSEngland #NCTH #EOEGS #GenderAffirmHealthcare #FuckTheUK

Feeling simultaneously anxious and dumb over feeling anxious about this 🥺🤦‍♀️

Yes, we know logically that voice training has been a massive struggle for us and invokes a lot of complex feelings, where:

  • we've had insufficient success with voice training, despite starting back in December 2021, to overcome voice dysphoria;
  • our voice has been causing us increasing anxiety since we plateaued about 2 years ago;
  • our RSD (Rejection Sensitive Dysphoria) makes us want to just give up rather than try again, as anything less than perfection feels worthless and we expect to fail, so why even try;
  • we feel like we won't ever have sufficient alone time to practice uninterrupted in quiet without anyone being able to hear us;
  • we don't want the kind of stereotypical femme voice pushed by (mostly-US) trans fem voice coaches like TransVoiceLessons, whom we cannot stand;

etc., etc.

We know this all rationally, but we still feel DUMB that we're currently in fight or flight mode over the "Speech & Language Therapy" initial assessment appointment at 14:00 BST 😖

We know we should feel grateful that we're getting anything from the NHS related to gender-affirming care, as they only offer the barest minimum of care and it's taken us from late May 2021 to even progress this far through multiple layers of waitlists and gatekeeping  

Right now, we'll just trying to keep ourselves calm and trying to avoid overthinking about it, so we don't truly spiral 😵‍💫

#VoiceTraining #VoiceDysphoria #Speech&LanguageTherapy #RSD #anxiety #NHS #EOEGS #NCTH #trans #TransFem #transgender #transition #SilentlyScreaming