"Do you remember the Human Genome Project? I’m not sure the Trump administration wants you to."
https://www.statnews.com/2025/06/05/nih-national-human-genome-project-institute-hgp-archives-trump-cuts/
(#paywalled)

"My job was to preserve and provide access to the records of the Human Genome Project [#HGP]...All of that work, like so much else at #NIH, is currently being dismantled...The digital archival records my colleagues and I maintained are currently inaccessible. I worry that they might be gone altogether, either now or sometime in the future."

#DefendResearch #Medicine #OpenData #Preservation #Takedowns #Trump #TrumpVResearch #USPol #USPolitics

#AI #GenerativeAI #AIRegulation #HumanGenome #HGP: "Today with generative AI, we are face similar unknowns and anxieties. We have reached a level of scientific breakthrough that points to immense promise—and risk should it fall into the wrong hands. Through the Human Genome Project, humanity chose to rally a multi-disciplinary set of global stakeholders to co-develop the technology and share it out for the betterment of society, and that paid off significantly in scientific and economic ways—we should follow this instinct again.

The HGP provides a playbook for developing successful co-governance mechanisms and public policy that fosters cooperation from governments; productive innovation across industries; and investments in ethical, legal, and social safeguards. At a moment when governments are trying varying approaches to AI without much ability to get concrete and consistent governing rules in place, the HGP points to specific steps to take."

https://ssir.org/articles/entry/human-genome-project-artificial-intelligence