Carole Bruce

@[email protected]
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5 Posts
#ME #POTS severe for 30 years. Mother, Grandmother, formally a psychotherapist. Politics, Art, Books.
Carole BruceNov 22, 2022
Sparrow/LizNov 21, 2022

brain fog makes it hard to remember all the things that can make POTS worse

I wrote a guide to things that can flare POTS-related dizziness, so you only have to remember four basic categories

#POTS
#NEISvoid
#Dizziness
#Syncope
#LongCovid

https://liminalnest.wordpress.com/2022/11/21/pots-101-dizziness-and-what-triggers-it/

POTS 101: dizziness and what triggers it

Liminal Nest
Carole BruceNov 21, 2022
Trying to rest in an #me crash is like lying at the shoreline on a stony beach with waves crashing over and over your body. It’s never a quiet and peaceful release, it’s a clinging on until the tide turns then lying beached and breathless until the next time.
#ME #MECFS #longcoivd
Carole BruceNov 21, 2022
“the years of neglect and frequent psychological abuse aimed at people with #ME #CFS If you don’t believe this is a thing, trust me, it’s a thing.”
From Marcus Sedgwick who tragically died last week aged 54.
Carole BruceNov 20, 2022
#ME is a violent, turbulent condition. Words like brain fog, tiredness, aching, mood disturbance, interrupted sleep patterns, do not begin to describe the turmoil of #MECFS bodies. It’s like being attacked by a malevolent being, often for decades and without help or understanding