I know that #EDS #POTS and #MCAS often co-occur with #Autism but do any of you have:
It is caused by an overactive immune system which inflames and attacks the joints. You can get it at any age, kids have it.
I used to run every day, then suddenly I could hardly walk.
Not to be confused with Osteoarthritis (brought on by 'wear and tear' in older age).
I was wondering if this is an #ActuallyAutistic thing or a 'me' thing!
@pixelbud @actuallyautistic I have it too!!! Oh my goodness, I’ve never met anyone who had it before!
Are you on biologics?
Do you still have psoriasis?
How are you coping?
You don’t have to answer, I’m just curious!
@autisticbookclub @pixelbud @actuallyautistic Not the one you asked, but I have psoriasis and use Adaluminab, with beginning symptoms of arthritis. I think therapy started just in time, some pain in my fingers and toes at the end of the med cycle, and tendon pain in both arms. I have a few patches of psoriasis left, but it's a lot better than before.
My father had severe arthritis in his hands and feet and Ethanercept stopped the progression almost completly, before he passed away a decade ago
@IndustrialRobot @pixelbud @actuallyautistic Hi, I also have #PsoriaticArthritis ! I'm so pleased that they were able to catch it in time, I believe that if you start therapy within 3 months of being diagnosed that it can work very well.
Thank-you for telling me about your father, that is really encouraging to know, I shall keep on taking #Etanercept! 💗
@pixelbud I’m sorry to hear that it took so long to diagnose you. I had it on my face too, I had it everywhere. People used to stare… but one of the side effects of Etanercept is that it clears up Psoriasis. Now I’ve only got one patch on my elbow, I still can’t believe it.
It was an interesting social experiment, I found not many people think that ‘it’s what’s on the inside that counts’.
I’m glad your meds are working now 💗
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