I know that #EDS #POTS and #MCAS often co-occur with #Autism but do any of you have:
It is caused by an overactive immune system which inflames and attacks the joints. You can get it at any age, kids have it.
I used to run every day, then suddenly I could hardly walk.
Not to be confused with Osteoarthritis (brought on by 'wear and tear' in older age).
I was wondering if this is an #ActuallyAutistic thing or a 'me' thing!
@autisticbookclub @actuallyautistic i have autoimmune arthritis. Autoimmune diseases are more common in families with autism yes.
Mine flares with stress or anxiety. I take immunosuppressants to manage it but it also takes constant management of movement, rest, stress etc.
@autisticbookclub @actuallyautistic
Is it autoimmune? My impression is that autistics seem more prone to autoimmune ailments.
@IzabelaKaramia @actuallyautistic It is #autoimmune the best treatment is immunosuppressants, not the greatest thing to be taking during a pandemic!
I’d never heard of it before I got it, I only knew about the older ppl arthritis. It can also mirror #ChronicFatigueSyndrome it has that level of exhaustion.
I wonder what all these conditions have in common to link them to #Autism ?
@cvwillegen @IzabelaKaramia @actuallyautistic Oh dear, I think I made a mistake. I stopped taking it when I got Covid, I suppose I'll catch it again at some point, and I won't stop taking it next time!
Thank-you for sharing this info! xx
@cvwillegen @IzabelaKaramia @actuallyautistic I’d love to, but I don’t have a specialist appointment for months! 🤣
My GP has no idea about the meds I’m on.
I’ve found the more complex my health situation, the more I realise that GP’s are like the ‘Medical Helpdesk’, they can only do so much before they have to eacalate you to the next level of support. Unfortunately the next level is booked up and can only see you twice a year. 🤷♀️
@patronofthemad @actuallyautistic I’m glad to meet you but sorry you have it!
May I ask how it affects you? And how you manage it?
No worries if you’d rather not say!
#InflammatoryArthritis
@pixelbud @actuallyautistic I have it too!!! Oh my goodness, I’ve never met anyone who had it before!
Are you on biologics?
Do you still have psoriasis?
How are you coping?
You don’t have to answer, I’m just curious!
@autisticbookclub @pixelbud @actuallyautistic Not the one you asked, but I have psoriasis and use Adaluminab, with beginning symptoms of arthritis. I think therapy started just in time, some pain in my fingers and toes at the end of the med cycle, and tendon pain in both arms. I have a few patches of psoriasis left, but it's a lot better than before.
My father had severe arthritis in his hands and feet and Ethanercept stopped the progression almost completly, before he passed away a decade ago
@IndustrialRobot @pixelbud @actuallyautistic Hi, I also have #PsoriaticArthritis ! I'm so pleased that they were able to catch it in time, I believe that if you start therapy within 3 months of being diagnosed that it can work very well.
Thank-you for telling me about your father, that is really encouraging to know, I shall keep on taking #Etanercept! 💗
@pixelbud I’m sorry to hear that it took so long to diagnose you. I had it on my face too, I had it everywhere. People used to stare… but one of the side effects of Etanercept is that it clears up Psoriasis. Now I’ve only got one patch on my elbow, I still can’t believe it.
It was an interesting social experiment, I found not many people think that ‘it’s what’s on the inside that counts’.
I’m glad your meds are working now 💗
Autism spectrum disorders is a heterogenous group of neurodevelopmental disorders, the etiology or etiologies of which remain unknown. Increasing evidence of autoimmune phenomena in individuals with autism could represent the presence of altered or inappropriate ...
Autistic Book Club
Niamh Garvey
Iza Running Again
Christ van Willegen
pj
Sorrow, Patron of the Mad
pixelbud
IndustrialRobot
always tired (moved to chaos)
Eowyn
sentient water
Carlos Solís
kt