Autistic Book ClubJan 6, 2023

#AskingAutistics

I know that #EDS #POTS and #MCAS often co-occur with #Autism but do any of you have:

#InflammatoryArthritis ?

It is caused by an overactive immune system which inflames and attacks the joints. You can get it at any age, kids have it.

I used to run every day, then suddenly I could hardly walk.

Not to be confused with Osteoarthritis (brought on by 'wear and tear' in older age).

I was wondering if this is an #ActuallyAutistic thing or a 'me' thing!

@actuallyautistic

Show threadIza Running AgainJan 6, 2023

@autisticbookclub @actuallyautistic

Is it autoimmune? My impression is that autistics seem more prone to autoimmune ailments.

Show threadAutistic Book ClubJan 6, 2023

@IzabelaKaramia @actuallyautistic It is #autoimmune the best treatment is immunosuppressants, not the greatest thing to be taking during a pandemic!

I’d never heard of it before I got it, I only knew about the older ppl arthritis. It can also mirror #ChronicFatigueSyndrome it has that level of exhaustion.

I wonder what all these conditions have in common to link them to #Autism ?

#InflammatoryArthritis

Show threadChrist van WillegenJan 7, 2023
@autisticbookclub @IzabelaKaramia @actuallyautistic "fortunately" the most people who die from Covid-19 are overwhelmed by their own immune system response, so having medication that suppresses it may not be the problem in this particular case. I, too, have such medication (for another disease), and, according to my specialist, this may have helped me (I only got a fever and taste/smell loss from Covid).
Show threadAutistic Book ClubJan 7, 2023

@cvwillegen @IzabelaKaramia @actuallyautistic Oh dear, I think I made a mistake. I stopped taking it when I got Covid, I suppose I'll catch it again at some point, and I won't stop taking it next time!

Thank-you for sharing this info! xx

Show threadChrist van Willegen
@autisticbookclub @IzabelaKaramia @actuallyautistic please consult your GP or specialist before doing anything related to medicine usage!
Jan 7, 2023 at 12:55pmWeb
Show threadAutistic Book ClubJan 8, 2023

@cvwillegen @IzabelaKaramia @actuallyautistic I’d love to, but I don’t have a specialist appointment for months! 🤣

My GP has no idea about the meds I’m on.
I’ve found the more complex my health situation, the more I realise that GP’s are like the ‘Medical Helpdesk’, they can only do so much before they have to eacalate you to the next level of support. Unfortunately the next level is booked up and can only see you twice a year. 🤷‍♀️

#YoureOnYourOwn

Show threadChrist van WillegenJan 8, 2023
@autisticbookclub @IzabelaKaramia @actuallyautistic I'm used to the Healthcare system we have 😜. You can't ask a question via electronic means? Or at the apothecary? In any case, if you have questions, write them down to ask at your next appointment. I find that writing down my questions helps me bring them up, and formulate them in the first place!