MEActNOWDec 27, 2022

@[email protected] yes, many #mecfs and #LongCovid patients have tried it. I am taking it too. If you have #MCAS have to be more careful. #NattoSerra combination works well for fibrin #microclots.

This might help:
https://pharmd.substack.com/p/frequency-asked-questions-nattokinase

Rapid-Fire FAQ: Nattokinase and Lumbrokinase

Please check here for all your questions on these proteolytic enzymes used in Long Covid and ME/CFS!

Studies, Surveys, & Supplements
Show threadNina Hatfield
@MEActNOW Can I ask in what way you need to be more careful with it if you have #MCAS? I have both MCAS and #MECFS and didn't tolerate nattokinase the first time I tried it.
Dec 27, 2022 at 10:24pmWeb
Show threadMEActNOWDec 27, 2022
@ninahatfield #Nattokanise contains #histamine which you know, is an issue with #MCAS. Some take it and then take George's Distilled Aloe water.... however, it does not work for some. Lumbrokinase is an alternative, but much more exepensive (also, fewer studies conducted).
Show threadNina HatfieldDec 27, 2022
@MEActNOW oh wow, I didn’t know it contained histamine. No wonder. Thank you!
Show threadMEActNOWDec 27, 2022

@ninahatfield it is an enzyme derived from fermented soy beans and contains histamine. I have mild MCAS.

https://pharmd.substack.com/p/nattokinase-survey-data - see if this helps you...

I had some side effects, but it really helped me get back to pre P2 jab levels and then push through to better walking range. I have stopped taking it around and during monthly cycle.

Nattokinase Survey Data

Placeholder with some nattokinase charts: MUCH more data to be added soon with commentary!

Studies, Surveys, & Supplements
Show threadEmily JohnsonDec 28, 2022
@MEActNOW @ninahatfield I wonder if it’s tolerable so long as those sensitive are on multiple MCAS meds that would counteract the histamine harm? Like how before I couldn’t tolerate many foods but on said meds, now I can
Show threadMEActNOWDec 29, 2022
@emily_rj @ninahatfield - https://pharmd.substack.com/p/i-have-covid-what-should-my-kids - some prescription alternatives listed here. She's a PharmD and will try to answer questions posted to her substack.
"I have COVID! What should my kids and I take to reduce chances of severe illness and Long COVID?" (Updated 9/14/24)

I get this question a lot. Here is some info that may help adults & children with COVID.

Studies, Surveys, & Supplements
Show threadEmily JohnsonDec 29, 2022
@MEActNOW @ninahatfield Forgot about this as per @LongCovidPharmD’s latest newsletter — “Healthy Origins makes a soy-free nattokinase but unfortunately it is not enteric-coated and may require higher doses for comparable efficacy.” https://www.amazon.com/Healthy-Origins-Nattokinase-Multi-Vitamins/dp/B01FLMAGZU/ref=sr_1_2?keywords=soy-free%20nattokinase&qid=1662792548&sr=8-2&utm_source=substack&utm_medium=email
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