What is the impact of #covid on #PwME in the post-Omicron, post-vaccine era?
Please boost vigorously!
I'll try to put a poll on the bird site as well - please don't respond to both.
If you had #mecfs pre-pandemic, and got #covid after Dec 2021, did it result in a significant functional reduction that:
Here are the results for the poll I ran on the effect of #Omicron on #PwME. I've combined two polls: from mastodon (n=26) and the bird site (n=71), both of which had similar results. Getting #covid after Dec 2021 resulted in a significant functional reduction that: * lasted over 6 months - 39% * is ongoing (infected <6 months ago) - 30% * mostly resolved within 6 months - 14% * acute illness only - 17% So about 30% of people had an okay outcome, and up to 70% a bad one. This is comparable to the results from MEAction's Mar 2021 survey which found 66% of respondents had a worsening of symptoms that lasted over six months. This suggests that 'milder' variants and vaccination have not substantially decreased the risks for #PwME. Boo ;( #mecfs @mecfs #CovidIsNotOver
A little confused by the question. Is it for those who have had MECFS and were vaccinated and got COVID, or does it also include those never infected but whose ME symptoms worsened post-vax?
I have data for that answer & more from a large survey I did with over 1500 responses. A small % were pwME. It will take a bit to analyze first, though.
@LongCovidPharmD Ah, thanks for pointing that out.
I want to know how Omicron variants have affected people who already had #mecfs. This is to inform the current risk of getting infected (we have been shielding for three years and it is getting tiresome). I'm not concerned with if they were vaccinated or not (at this granularity - if I were doing a more detailed survey I would try to tease that out), but I assume a fair proportion would have been by the time Omicron came on the scene. Post-vax worsening of #mecfs is a separate question!
The only survey results on this question I can find are from early 2021 and that is from the Alpha/Delta pre-vax era, which arguably is not of much use to determine current risks.
@LongCovidPharmD has a recent survey on vaccine reactions for #PwME on the bird site. Worth having a look to get a feel for the risk of different options. Let me know if you need me to find it for you.
@ArrowbearMoore Her reaction might be similar to covid vaccine reactions in people with Long Covid. I'm guessing she might have bout a 1 in 4 chance of the vaccine worsening her ME. On the other hand, an infection would likely have even worse consequences so it depends on how well you think you can avoid infection. See this thread...
https://twitter.com/organichemusic/status/1590308698135883777
“‼️SURVEY UPDATE‼️ How has COVID-19 vaccination affected your #LongCovid symptoms? With 654 responses to this question so far: 52% no change (or fleeting changes ≤ 1 wk of vaccine) 28% worsened❌ 17% improved✅ 3% a mix How long did benefits or relapses last? See next tweet⬇️”
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