#epilepsy #seizures it's been almost 20 years since I was diagnosed with epilepsy. Have you ever had a seizure? I have almost died before- tangled up in a curtain, etc- but outside of #sudep, I have heard one cannot die from a seizure...

#Epileptics are you out there? Hugs.

Outrageous! Neurologists offer vital healthcare. I say this as the grieving mother of a young woman who succumbed to #SUDEP - Sudden Unexpected Death in EPilepsy - 10 years ago. Thanks to her neurologist, Alice (daughter), her father & I knew her #epilepsy put her at risk of early death.

RE: https://bsky.app/profile/did:plc:gcvoa7aaq5jogdstiwblqo7s/post/3mf5x77zamw2s
Heute ist #SUDEPActionDay. Wusstest du, dass auch in Deutschland jährlich etwa 700 meist junge Menschen an den Folgen eines epileptischen Anfalls versterben? Aufklärung kann Leben retten. Informiere dich über die Risiken und was man tun kann. Mehr dazu hier: https://sudep.de/was-ist-sudep/ #SUDEP #Epilepsie #Aufklärung #WissenKannLebenRetten
WAS IST SUDEP? - SUDEP.de

Was ist SUDEP? SUDEP steht für den Plötzlichen Epilepsietod („Sudden Death in Epilepsy“) und ist ein ernstzunehmendes Risiko für alle Menschen mit Epilepsie. Jedes Jahr verstirbt etwa eine von 1.000 betroffenen Personen daran. Schon einfache Maßnahmen können helfen, das Risiko deutlich zu senken. Zu einem SUDEP kann es aufgrund eines anfallsbedingten Atemstillstands in der sog. […]

SUDEP.de
The Hidden Dangers of Unrecognized Seizures: What You Need To Know

Seizures often differ from their dramatic portrayals in films. Recognizing less obvious symptoms, such as laughter or lip-smacking, can be crucial for diagnosing and treating epilepsy effectively. If you've watched a film or TV series where a character experiences a seizure, your image likely inc

SciTechDaily

Epilepsy surgery associated with decreased mortality and SUDEP (sudden unexplained death) compared to non operative management according to new meter analysis
#epilepsy #sudep @[email protected]

https://pubmed.ncbi.nlm.nih.gov/36114753/#:~:text=Patients%20with%20drug%2Dresistant%20epilepsy,death%20in%20epilepsy%20(SUDEP).

Drug-resistant epilepsy and mortality-Why and when do neuromodulation and epilepsy surgery reduce overall mortality - PubMed

Patients with drug-resistant epilepsy have an increased mortality rate, with the majority of deaths being epilepsy related and 40% due to sudden unexpected death in epilepsy (SUDEP). The impact of epilepsy surgery on mortality has been investigated since the 1970s, with increased interest in this fi …

PubMed