Deborah Lawrence HaleThank you. It is odd finding yourself alone after raising family.
My husband, George X. Hale, & I celebrated our 40th wedding anniversary one month before he died. Our daughter, Alice, died four years earlier, a week before her 30th birthday, of #SUDEP - Sudden Unexpected Death in EPilepsy.
Because Alice's neurologist had warned us of the possibility of #SUDEP, Alice had asked us to donate her organs if she died before we did. She was able to save three lives. Two people each got a kidney & one person got her liver. Two more people regained their eyesight with her corneas.
Since 2015, the 10 days from April 20 through May 1 each year have been the most difficult days for me. I found Alice sitting on the bathroom floor at about 4:00 AM on the 20th. She had succumbed to #SUDEP - Sudden Unexpected Death in EPilepsy.
May 1 would have been her 30th Birthday.
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#SUDEP - Sudden Unexpected Death in EPilepsy.
Alice Katharine Hale died of SUDEP 10 days before her 30th birthday. We were lucky, though, because she went into a deep, long coma at two-years-old & we were told she would probably die.
She woke up & we were blessed with 26 more years with her.❤️💜🏳️🌈💫
I wish I had known when my dear daughter Alice died on April 20, 2015, that scientists investigating #SUDEP - Sudden Unexpected Death in EPilepsy - were requesting 🧠 donations from SUDEP victims to help them learn more about SUDEP. By the time I learned, it was too late.
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💔
#SUDEP - Sudden Unexpected Death in EPilepsy - stole our daughter #AliceHale, from us 11 years ago today, April 20.
Alice and her brother, Morgan, were the greatest gifts in our lives! Alice, you left too soon. 💙💜❤️
©#epilepsy #seizures it's been almost 20 years since I was diagnosed with epilepsy. Have you ever had a seizure? I have almost died before- tangled up in a curtain, etc- but outside of #sudep, I have heard one cannot die from a seizure...
#Epileptics are you out there? Hugs.
Outrageous! Neurologists offer vital healthcare.
I say this as the grieving mother of a young woman who succumbed to #SUDEP - Sudden Unexpected Death in EPilepsy - 10 years ago. Thanks to her neurologist, Alice (daughter), her father & I knew her #epilepsy put her at risk of early death.
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Martin RöderHeute ist #SUDEPActionDay. Wusstest du, dass auch in Deutschland jährlich etwa 700 meist junge Menschen an den Folgen eines epileptischen Anfalls versterben? Aufklärung kann Leben retten. Informiere dich über die Risiken und was man tun kann. Mehr dazu hier: https://sudep.de/was-ist-sudep/ #SUDEP #Epilepsie #Aufklärung #WissenKannLebenRetten
WAS IST SUDEP? - SUDEP.de
Was ist SUDEP? SUDEP steht für den Plötzlichen Epilepsietod („Sudden Death in Epilepsy“) und ist ein ernstzunehmendes Risiko für alle Menschen mit Epilepsie. Jedes Jahr verstirbt etwa eine von 1.000 betroffenen Personen daran. Schon einfache Maßnahmen können helfen, das Risiko deutlich zu senken. Zu einem SUDEP kann es aufgrund eines anfallsbedingten Atemstillstands in der sog. […]
Matt WillemsenThe Hidden Dangers of Unrecognized Seizures: What You Need To Know
https://scitechdaily.com/the-hidden-dangers-of-unrecognized-seizures-what-you-need-to-know/ #Dangers #Unrecognized #Seizure #Epilepsy #symptoms #laughter #LipSmacking #BlinkingRapidly #CryingOut #screaming #SUDEP #treatment
https://scitechdaily.com/the-hidden-dangers-of-unrecognized-seizures-what-you-need-to-know/ #Dangers #Unrecognized #Seizure #Epilepsy #symptoms #laughter #LipSmacking #BlinkingRapidly #CryingOut #screaming #SUDEP #treatment
The Hidden Dangers of Unrecognized Seizures: What You Need To Know
Seizures often differ from their dramatic portrayals in films. Recognizing less obvious symptoms, such as laughter or lip-smacking, can be crucial for diagnosing and treating epilepsy effectively. If you've watched a film or TV series where a character experiences a seizure, your image likely inc