Mastodawn

Really good chat about recovering from long term illness
https://m.youtube.com/watch?v=yTmVBcXlqws
#LongCovid #COVID #mcfs #me

The Best Recovery Approach: Holistic, or Pharmacological? | Visible Podcast #21

YouTube

UnitedWeStand🇪🇺🌻🫂Mar 15

#MCFS #COVID19
https://www.zdfheute.de/wissen/mecfs-gesundheit-terrax-nano-jens-foell-kolumne-100.html?at_push_channel=important-news&at_notification_title=ZDFheute&at_notification_text=ME%2FCFS+nach+Corona+war+ein+Worst+Case+mit+Ansage%3A+Was+wir+nun+tun+k%C3%B6nnen+-+die+Wissens-Kolumne+von+NANO+und+Terra+X&at_push_time=2026-03-15T08%3A10%3A22.000Z

ME/CFS: Worst Case nach der Corona-Pandemie | Terra-X-Kolumne

Die Befürchtung ist eingetreten: Covid-19 hat Hunderttausende in Deutschland mit langfristigen Beschwerden zurückgelassen. Und nun werden sie weitgehend ignoriert.

ZDFheute

Andi Waffeln!Aug 18, 2025

#PostCOVID #COVID19 #LongCOVID #MCAS #MCFS #Histamin #Allergie

Mehr als sehenswert!!!

https://youtube.com/live/E0Yb6FLEzR8?si=4PEiwSPcT2vt5Xel

eladnarra May 12, 2025

Today is ME Awareness Day, when ME Action runs their "Millions Missing" campaign. This year there's a rally in DC and online to protect our support systems like Medicaid and telehealth.

I don't really know what to say; my period was super late this month, so I'm exhausted.

So instead I'll post this, which perfectly encapsulates the drain of in-person healthcare appointments on my life:

https://mollyfree.substack.com/p/survival-is-insufficient

#MCFS #MillionsMissing #disabilitySoS #SaveMedicaid

Survival is insufficient

In defense of social support, sound science, and the right to disabled joy

Well, Actually

Dr Ro Smith Jun 27, 2023

Decode ME have changed their criteria for inclusion in their study and they now want my DNA.

This is just... It means a lot to me. And I know it will mean a lot to others who wanted to take part too.

If you haven't yet completed their questionnaire, and you have a ME/CFS diagnosis (& are in the UK), please do so now! https://www.decodeme.org.uk/portal/

Their statement on the change: https://www.decodeme.org.uk/inviting-more-participants-to-donate-dna/

#mcfs #chronicFatigueSyndrome #ChronicIllness

Take Part - DecodeME

Join the world’s largest study of ME/CFS Sign up and complete the questionnaire before November 15th – 5pm Together we can decode ME/CFS. Scientists and people with ME/CFS, carers and charities have come together to create DecodeME. It’s a huge genetic study that aims to uncover causes of ME/CFS, pointing the way towards effective treatments.…

DecodeME

Cazimodo Creative Jun 25, 2023

Good morning everyone. Today Ziggy decided that she didn't want to come out of her cage, but then she did...and didn't...and did.😂 I think, because it is pretty dark this morning weather wise she is a bit confused. Jadie just takes it all in her stride, waiting patiently until the little Prima Donna makes up her mind. #parrots #petsofmastodon #birdsofmastodon #goodmorning

I am going to take it easy today as my energy levels are now quite low and I have to work tomorrow, so will try and do some work on the #crochet kids' drawing toy, but I may need to just rest practically. The thing about even "mild" #mcfs is that you have to manage it constantly and learning to listen when your body tells you to put the brakes on is part of that.

Have a lovely day, whatever you get up to 🤗