#PostCOVID #COVID19 #LongCOVID #MCAS #MCFS #Histamin #Allergie

Mehr als sehenswert!!!

https://youtube.com/live/E0Yb6FLEzR8?si=4PEiwSPcT2vt5Xel

Today is ME Awareness Day, when ME Action runs their "Millions Missing" campaign. This year there's a rally in DC and online to protect our support systems like Medicaid and telehealth.

I don't really know what to say; my period was super late this month, so I'm exhausted.

So instead I'll post this, which perfectly encapsulates the drain of in-person healthcare appointments on my life:

https://mollyfree.substack.com/p/survival-is-insufficient

#MCFS #MillionsMissing #disabilitySoS #SaveMedicaid

#Liegenddemo für mehr Bewegung in der Forschung zu ME/CFS

Für weltweit schätzungsweise 17 Millionen Menschen ist es ein enormer Kraftakt ganz alltägliche Dinge, Selbstverständlichkeiten wie laufen oder sprechen, zu schaffen. Diese 17 Millionen Menschen sind an Myalgische Enzephalomyelitis oder kurz ME/CFS erk…...

https://radiocorax.de/liegenddemos-fordern-mehr-bewegung-in-der-forschung-zu-me-cfs/

#Halle #Leipzig #Gesundheit #MCFS

Decode ME have changed their criteria for inclusion in their study and they now want my DNA.

This is just... It means a lot to me. And I know it will mean a lot to others who wanted to take part too.

If you haven't yet completed their questionnaire, and you have a ME/CFS diagnosis (& are in the UK), please do so now! https://www.decodeme.org.uk/portal/

Their statement on the change: https://www.decodeme.org.uk/inviting-more-participants-to-donate-dna/

#mcfs #chronicFatigueSyndrome #ChronicIllness

Good morning everyone. Today Ziggy decided that she didn't want to come out of her cage, but then she did...and didn't...and did.😂 I think, because it is pretty dark this morning weather wise she is a bit confused. Jadie just takes it all in her stride, waiting patiently until the little Prima Donna makes up her mind. #parrots #petsofmastodon #birdsofmastodon #goodmorning

I am going to take it easy today as my energy levels are now quite low and I have to work tomorrow, so will try and do some work on the #crochet kids' drawing toy, but I may need to just rest practically. The thing about even "mild" #mcfs is that you have to manage it constantly and learning to listen when your body tells you to put the brakes on is part of that.

Have a lovely day, whatever you get up to 🤗

New Open Medicine Foundation study on #neutrophils and #MCFS announced:

https://www.omf.ngo/ron-davis-new-neutrophil-study/

@mecfs