Mastodawn

ahimsa May 31, 2025

New video from #MEAction

"The #MillionsMissing Share Their Stories 2025"

https://www.youtube.com/watch?v=BTCqXA1p8OY

"…a small sampling of the Millions Missing. You sent in your photos and a few words for us to display at #MillionsMissing 2025.

These stories deserve to be told. Each person deserves to be seen. And know that they represent so many others."

Still images here:

https://www.meactions.org/the-millions-missing

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #MEAwareness #MillionsMissing #Disability #DisabilitySOS

The #MillionsMissing Share Their Stories 2025

YouTube

ahimsa May 17, 2025

Email update from #MEAction

"Millions Missing 2025: SOS - The Signal Was Sent!"

https://mailchi.mp/meaction/millionsmissing-2025-our-common-fight-is-what-matters-3574417

Lots more photos and videos - from the protest in DC, from folks who posted from home, and from other countries.

Also includes updates on meetings with congress, more signatures on the #MEAction letter to NIH, the fight to save Medicaid from budget cuts, and more.

@mecfs

#MEcfs #LongCovid #MillionsMissing #Medicaid #SaveMedicaid #DisabilitySOS

Show thread

ahimsa May 12, 2025

Okay, I think that's it! If you've made it all the way to the end of my thread, thanks so much for reading! 😁

I may be done posting but I'll continue to look for and boost other posts about World ME Day / ME Awareness Day / Millions Missing.

I'll end with a story by The Sick Times about the #MEAction Millions Missing protest at the capitol:

https://thesicktimes.org/2025/05/12/millions-missing-protest-at-the-capitol-demands-myalgic-encephalomyelitis-funding-social-support/

16/16

@mecfs @longcovid
@disability

#MEcfs #LongCovid #MillionsMissing #DisabilitySOS #MEAwarenessDay #WorldMEDay

“Millions Missing” protest at the Capitol demands myalgic encephalomyelitis funding, social support - The Sick Times

Myalgic encephalomyelitis (ME), Long COVID, and other chronic disease advocates demonstrated outside the Capitol Building in Washington, D.C., this afternoon. Organized by the advocacy group #MEAction, demonstrators demanded that the federal government fund ME research and preserve vital social support systems like Medicaid and telemedicine.

The Sick Times - Chronicling the Long Covid crisis

ahimsa May 12, 2025

💙 It's May 12th, International ME/CFS Awareness Day 💙

My ME/CFS onset was in Jan 1990

🚨 Many recent ME/CFS cases have been triggered by COVID 🚨

In this thread I plan to post about 3 main things:

1. My ME/CFS story (briefly)

2. Helpful resources for patients and clinicians

3. Advocacy options for patients & allies (friends/family) - mostly US based

1/n

@mecfs @longcovid

#MEcfs #LongCovid #PostCovid #Disability #DisabilitySOS #CovidIsNotOver #MillionsMissing #MEAwareness #WorldMEDay

eladnarra May 12, 2025

Today is ME Awareness Day, when ME Action runs their "Millions Missing" campaign. This year there's a rally in DC and online to protect our support systems like Medicaid and telehealth.

I don't really know what to say; my period was super late this month, so I'm exhausted.

So instead I'll post this, which perfectly encapsulates the drain of in-person healthcare appointments on my life:

https://mollyfree.substack.com/p/survival-is-insufficient

#MCFS #MillionsMissing #disabilitySoS #SaveMedicaid