@cohanf yeah that would be my take away from what happened. Your whole sense of being hot or cold is scrambled. At one point I was packed in ice and shivering and saying ok I think I'm cool finally. But it was just my body in shock so we had to slow down and cool more gently.

I think long cool shower might eventually work to your core, but yeah a brief cold shower won't change much.
#heatwaveHealth

So yeah, my new special interest is how to survive a heatwave AND a chronic illness.

Will continue to add things as I figure them out but for an abundance of ideas on how to get or stay cool check out this thread (and add your own!).

https://disabled.social/@vlrny/114831844215352969

I added a #heatwaveHealth tag on the OG post as well.

I feel like I am surviving a natural disaster all by myself, so very glad for all your company, even if you're in your own weird solo disaster as well.

Stay fresh cheesebags!

☝️ whenever I'm not stable and safe I take major action. Mostly hiding out in the basement, wet scarves, cold food and drinks, tylenol helps, hot water bottles with cold water.

I'll get the shivers if I try and drop too much too fast, so have to go gently but firmly, and confirm with temp that I am in fact cool.

Staying well hydrated with extra salt (even though I don't sweat, go figure). If my lips don't feel plump and are wrinkly at all, it's a good hydration cue.
#heatwaveHealth

☝️in hindsight, I should have clocked and intervened during the heat exhaustion phase (it's so hard to tell what's not enough meds, too much meds, not about meds at all, the symptoms are very similar). #spoonieLife amirite!?

What's helping me now, is watching those signs, but also taking my temperature and heart rate fairly often.. anything above normal (even a bit, for my body) and HR around or above 100bpm, especially if it's doing rills and running up and down 15-20 points.

#heatwaveHealth