ALL of the big M.E. charities have seriously let down #pwME: as far as I can tell (having searched their websites as best I could and checked via search-engine too), none has instigated a #BuddySystem. However, ideally, they ought to all work together to develop a national one-stop system, where those in need and those who wish to volunteer can be brought together.
#SaveCarlasLife #BringMillieHome
https://crippledqueeranglo-europeanranter.blogspot.com/2023/05/pink-triangles-blue-triangles.html
Pink Triangles, Blue Triangles

Pink Triangles, Blue Triangles May is #InternationalMEAwarenessMonth &/or #MEAwarenessMonth. The 12th May is #InternationalMEAwarenessD...

“It’s clear that in Carla’s case, staff are not following #NICE guidelines [#NG206]. In fact, they appear to be actively working to flout them.”

#SevereME #SaveCarlasLife #ExposeMENow #BringMillieHome

Link to #TheCanary.co.uk:

https://www.thecanary.co/uk/analysis/2024/04/16/severe-me-carla-west-middlesex/

The family of ANOTHER young woman with very severe ME are scared their daughter is going to DIE in an NHS hospital

After public outcry & media coverage over #BringMillieHome, the NHS is now abusing another young woman, Carla, who lives with severe ME

Canary

Today is an opportune time for the UK’s #GeneralMedicalCouncil & #RoyalCollegeOfPhysicians to educate & inform relevant medics on the treatment of #pwME and specifically those of us with #SevereME following #NICEGuidance #NG206.

No more deaths in #NHS hospitals due to #ignorance &/or #iatrogenesis!

#SaveCarlasLife #ExposeMENow #BringMillieHome

https://youtu.be/cnvA3oT_ZyQ?si=Czx2BKd-z5bdDNRF

Explainer: Why are chronically ill people protesting at West Middlesex Hospital?

YouTube