Lily Rose HealthSep 18, 2023

I seem to have a constantly recurring rotator cuff injury on my right shoulder. I have no idea what could be causing it (except possibly EDS*).
Should I mention it to my GP?
I can help it with exercises, but it always comes back.

*No diagnosis of EDS, but it is in the family #RCCX #pwME

Show threadLily Rose HealthAug 18, 2023
@darnielle That's so interesting!
I wonder if mine would be similar.
I have the ridiculous combination of ME (CFS) and ADHD.
The connection between the two is fascinating. Have you encountered the #RCCX gene cluster theory?
Lily Rose HealthNov 21, 2022

Tonight's random symptom:
Pain between my ribs.
Cheers, body. You certainly can't be accused of being boring.

#Costochondritis #Fibromyalgia
#pwME #MEcfs
#SymptomRoulette
#RCCX #ConnectiveTissue

Lily Rose HealthNov 6, 2022
Today's #SymptomRoulette: very loud and uncomfortable #Tinnitus.
I've had it for as long as I've been ill (since 2003) but I'm sure it has got worse recently. ☹
Not the worst symptom by far, but decidedly not fun.
#pwME #MEcfs (maybe linked to #EDS) #RCCX
Lily Rose HealthNov 2, 2022
I saw a suggestion earlier that #LongCovid and, by extension, #MEcfs can damage connective tissue. Anybody know if there is research confirming this?
#EDS #Chiari #RCCX #CSFleak
Lily Rose HealthJul 24, 2022
I haven't talked much about my health here for a while, because I mostly use social media for escapism.
I became unwell in 2003. It took 10 years to get a diagnosis.
I was diagnosed with #MEcfs in 2013 the #Fibromyalgia in 2015.
It is a very complicated health puzzle. The #RCCX gene cluster theory by Dr Sharon Meglathery provides some clues, connection with #EDS
Additionally I had a head injury back in 1983 which I believe may be relevant. Plus Mono/ glandular fever in 1991.