I’m not a fan of the IOT, but I got a smart light bulb for security, and now B is in charge of switching it on when we’re at home (with support) and you should see the joy on her face when the lamp lights up 🤩

#disability #ProfoundDisability

Crying with pain and exhaustion- all it took was a 40 minute meeting with a FG TD ha ha

Anyway, job done, he listened , and hopefully took my points on board (he was actually very pleasant!) and met B

#FuckLongCovid #Disability #ProfoundDisability

So the main carer has gone on her holidays and been replaced by *two* others! B is lapping up the attention and currently showing off her toast eating skills 😊

#Disability #ProfoundDisability

New home care worker is looking shell shocked at the amount that has to be done to help B get up and ready for her day service!

#Disability #ProfoundDisability #FeelingStressed

We’re having a picnic on the Donnybrook Road as B likes watching the cars go by

So far we haven’t been asked to move on

#Disability #ProfoundDisability

I did my best to ensure that I would be able to provide ongoing care for my profoundly disabled daughter, but the covid minimisers destroyed that plan. I dread to think what her future will be now

https://www.bbc.com/news/uk-england-wiltshire-67691453

#carers #LongCovid #ProfoundDisability #NoToNursingHomes