Today is #InternationalNursesDay, chosen because May 12th is the birthday of Florence Nightingale, the founder of modern nursing. What few people know, however, is that later in her life Florence Nightingale suffered a debilitating disease that often left her bed-bound and suffering from crippling depression. Though the cause of her illness has never been confirmed, and there are many hypotheses about what she may have suffered from, her symptoms also echo what we now call ME/CFS; Myalgic encephalomyelitis/chronic fatigue syndrome. That's why today is also #MECFSAwarenessDay.
I have ME/CFS. It's been a major part of my life for almost a decade now, even though I wasn't "diagnosed" until about four or five years ago. My world has gradually shrunk, and now I rarely leave the house, and often become overwhelmed by small things like social visits or showers or the slightest amount of exercise (like watering my plants or washing some dishes). I rely on my husband to care for me. There was no inciting "illness" or "event" that I can definitively trace this disease back to; I just slowly, gradually, over time, got worse until I was functionally disabled. There is no cure, and treatments only manage the symptoms, but don't relieve them. Most doctors have no idea how to deal with patients like me. Every year I get steadily worse through no fault of my own, and my world shrinks further. It's terrifying.









