Sitting so still in the dark the motion detector forgets you are there.
Sitting so still in the dark the motion detector forgets you are there.
Me trying to find the balance of meds and dosages to be able to function...
I’ve been training people such as my palliative care nurse, my specialty pharmacy nurse, and my physical therapist to TEXT instead of calling, and it’s working! I tell them phone calls make me anxious — which is 100% true, I just never thought to tell everyone. Try it!
Having the wisdom to bail on something, even if it is important to me, when I am crashing and I just know I no longer have the spoons.
I was tempted to hashtag disabilitySkillz this.
I gotta say, I expected folks to drop lil pithy gems on the #disabilitySkillz tag like: I know how to make pyjamas looks stylish.
But ya'll went DEEP. Super deep. You are all incredibly thoughtful perceptive compassionate tenacious humans.
And strong af.
Like, I have no words. I am so proud of your existence and endurance. :')
***
P.s. you are still welcome to drop the silly on the #disabilitySkillz tag. We can can be both profound AND absurd.
I can drink two cups of coffee and then take a nice nap! #adhd
Hey can we start a #disabilitySkillz tag? Anything on the topic of weird or under appreciated skills we have developed thanks to the pressures of our limitations. If you are having a shit day and can't think think of anything, drop a line anyway. Our kryptonite is often also our superpower, so post your blarg and we'll try and find the flip to booya! We have so many niche skills n adaptations we have normalized. I think it worth (and holy fuck I need it) highlighting and celebrating 'em.
3) Ethnographic awareness: Being present to observe a culture we're oft not full participants in, we often can identify & articulate norms and mores, both of practices & material culture, that abled folk regularly take as natural conditions of life.
4) Unequivocal mourning: In a society that shames acts of grief as being somehow an unjust imposition on others, "letting go"—as other replies here term it—is a skill many abled folk never find permission to learn.
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@vlrny Four come to mind:
1) Spoon management: Everyone has a limited number of spoons, but outside circumstantial conditions (e.g., raising a small child), abled folk tend to have spoons in such supply that budgeting them ain't usually a priority.
2) Active introspection: How one comes to recognize spoons as a thing; more generally, work we oft have to put in to figure out how to navigate a world that abled folk can just as often move through on norms and vibes alone.
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