Konfirmation im Energiesparmodus. Ich hätte zu Hause bleiben sollen.
#cfs

Sehr guter Gottesdienst, aber ein Wort an alle PastorInnen. Bitte sagt am Anfang, dass man auch sitzen bleiben darf. Es fällt nicht jedem leicht. Ich habe eiskalt bereits in der Kirche die Füße hochgelegt.

Thanks to my mum for getting everything ready for our family
#TeaPartyForME2026 on #BlueSunday2026 (on Sunday).

We’re doing it in aid of the Irish ME/CFS Association @IrishMECFSAssociation
https://www.idonate.ie/fundraiser/BlueSunday2026fortheIrishMECFSAssociation
but other worthy charities are available (see:
https://the-slow-lane.com/donation-pages )

#MEcfs #CFS #PwME #BlueSunday @mecfs

RE: https://mastodon.ie/@IrishMECFSAssociation/116054466731120376

2 days to go to start of tour.
#PwME #MEcfs #CFS #Ireland #mastodaoine @mecfs

The upcoming 5 Dr Amolak Bansal events involve a lot of resources (both money & time/energy) so we are spending some money on advertising.

Here is one ad going in the Cork Independent.

Note: Typo. The speaker's name is Dr Amolak Bansal

https://irishmecfs.org/blog/may-2026-5-free-talks-by-uk-expert-consultant-dr-amolak-bansal-in-corkdublingalwaylimericksligo-followed-by-free-teacoffee-biscuits

#MEcfs #PwME #CFS #mastodaoine @mecfs

May 31. That's your CFP deadline for AppSec Village at DEF CON 34.
No pressure!

🔗 https://buff.ly/j8vhDE5

#callforspeakers #callforpapers #cfp #cfs #defcon34

90-second local TV news (in New Mexico) segment on recent study looking at memorial messages for 500 people with ME/CFS

Universal links:
https://www.msn.com/en-us/health/medical/study-says-chronic-fatigue-syndrome/vi-AA22tWB6
or
https://www.youtube.com/watch?v=7T91vSdfL5g

This link won't work for many people:
https://www.koat.com/article/study-says-chronic-fatigue-syndrome-is-often-misunderstood/71224603

#MEcfs #PwME #CFS @mecfs

UK government press release: "Thousands of ME/CFS patients to benefit from first genomics study: People with chronic fatigue syndrome, also known as ME, to benefit from world-first genomics study"

https://www.gov.uk/government/news/thousands-of-mecfs-patients-to-benefit-from-first-genomics-study

#MEcfs #PwME #CFS @mecfs

Heute ist der #CFS-Tag (Chronisches Erschöpfungssyndrom). In Deutschland leben geschätzt 650.000 Menschen, die an ME/CFS erkrankt sind. Filmemacherin Laura Kansy ist eine von ihnen: https://www.3sat.de/film/docume/docume-hello-new-body-how-are-you-today-100.html?at_medium=Social%20Media&at_campaign=Mastodon&at_specific=3sat

#MECFS