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Note to self: write a bio next time you have some spoons.

I'm going to tell #MEcfs patients and most especially severely ill M.E patients the thing that I longed to hear through the eighties and early 1990s.

I'm going to say it now because I believe it is true:

Hold on. People are coming to help you.

#pwme #MEcfsRecovery

What does a POTSIE do when visiting their boyfriend after 2 months and they just took a shower?

Well I just went through the house completely naked, looking for boyfriend, just to ask: sweetheart, what colour are my legs right now??

And he confirmed what I've been seeing recently. My legs are purple after a shower.

#POTS

good night

I wish to dream about the ocean.

Good night

may the night be exciting this time.

I just paid my library bill.

It was extremely hard. There was a lot of: what do I fill in where? Where did I find that information again? How does online banking even work!

No I'm not new to online banking. Or to paying bills. I'm just experiencing more and more brainfog.

Be kind and considerate when someone struggles to do something you can only think of as easy. This was easy for me as well. Until it suddenly wasn't.

Good night

I wish you'll wake up feeling well.

Good night

I wish the night can calm you down <3

Good night

I wish you'll feel safe in all your dreams.

All the most recent posts on my timeline here are about pain.

I'm sorry. I wish you wouldn't have pain. I'm really hoping it will dissapear soon.

Good night

I wish you'll feel free in your dreams.