I am so hobbled by #ALS (bedridden) that I have decided to end it. I am four days into not eating and drinking almost nothing. Goodbye my friends.
@otto9otto
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Elon Musk recommends "conspicuous acts of kindness" as a response to the Palestinian-Israeli war. Such as providing medical care, pure drinking water, etc.: https://youtu.be/JN3KPFbWCy8?si=72dbXkdbLcGgWRHD
My #actuallyautistic telephone rant: https://docs.google.com/document/d/10zxuSlWwsXWl44_XHoRv2TqM248UtF_xrdmy-_7X9nQ/edit?usp=sharing
Telephone Rant
Phone Calls are Rude If you're 30 or over, you may remember how back in the 80s and 90s, calling during dinner hours was considered rude. The hours between 5-7 were for the family, and you'd never have your meal interrupted by a phone call. But, maybe that was just a Midwest thing. Prior to th...
Adventures in #ALS land: a wheel fell off my chair, so a kind stranger helped me back to the wheelchair van. Then a caring neighbor helped me out of the van and into the house. The wheel is now fixed.
Bad news for night owls and night shift workers: The world's largest study on light exposure and its impact on mental health, with almost 87,000 participants, has found that increased exposure to light at night increases a person's risk for psychiatric disorders such as anxiety, bipolar and PTSD severity as well as self-harm.
The risk of depression increased by 30%. Those who were exposed to high amounts of light during the day reduced their risk of depression by 20%.
https://medicalxpress.com/news/2023-10-largest-exposure-impact-mental-health.html
Largest ever study on light exposure proves its impact on mental health
The world's largest study on light exposure and its impact on mental health, with almost 87,000 participants, has found that increased exposure to light at night increases a person's risk for psychiatric disorders such as anxiety, bipolar and PTSD severity as well as self-harm. Importantly, the study also found that increasing exposure to daytime light can act like a non-pharmacological means for reducing psychosis risk.
If this motor neuron malady (similar to #ALS) ends up shortening my life, I'm gonna go down swinging: I exercise twice per day. When I don't go to the gym, I get winded doing vigorous chair exercises. (My balance is gone.)
The one good thing about this new diagnosis is that I no longer feel the need to gain weight (#ALS patients do better when they are heavy), which can be difficult for a life-long slim guy like me.
I asked my neurologist if treatment for ALS might help. She replied that "there is no evidence for that". I am continuing those measures anyway, as "no evidence" may not mean "no".
Well, gee, I don't have #ALS, What I have is "Severe, length dependent axonal sensorimotor polyneuropathy with diffuse denervation changes with concern for a superimposed active, generalized disorder of the motor neurons, their axons, or both involving the cervical and lumbosacral myotomes." Symptoms, and prognosis, is similar to ALS.