Fi2d ago

Good morning folks.

It was a lot cooler last night and I slept so well, I also started the Travis Baldree book that was sitting in the tbr pile, so the child will get the book soon and can stop nagging me for it.

Today is FND awareness day in the UK. Trust me to get diagnosed with it, just in time for the awareness day 😂 Honestly wish I looked as healthy as purple sparkle brain person in the picture 😂 For me, FND is pretty shit and affects every minute of my day, the more tired I am, the worse it is. Some days I can "trick" my body into behaving, but those days are few and far between. The biggest impact it has on me is functional limb weakness and speech difficulties, oh and the tremor is pretty bloody awful too. The gaslighting from the GP for years has been pretty awful too, had me thinking I was losing my mind. It took me being hospitalised with a suspected stroke for my GP to take me seriously and refer me to neurology, then the year long wait for the appointment. Getting diagnosed was a huge relief, even if neuro don't think I will get any better, at least they think I won't get any worse (or not anytime soon). So yeah, I'm going to share about awareness day, and then promptly forget it and go about my day.

Time for more coffee, Cozy Grove and then I might venture outside.

Have a lovely day everyone 😊

#GoodMorning #FND #FunctionalNeurologicalDisorder

Show threadUkeleleEric
@JustFi my wife has a similar condition, ataxia, that results in problems with tiredness, gait and speech problems. She can do most things, but only so much in a day. With her condition, there is no treatment (though gluten-free diet does reduce some of the symptoms), no cure, it is degenerative (though her rate of decline is not that bad at the moment), and she thus can't work. As an intelligent linguist, this frustrates her.
Mar 25 at 6:11amWeb
Show threadFi2d ago
@UkeleleEric I can relate to the frustration, I went from being very busy, active, working and being a carer, to having days where I can barely function, some days I can do it all, most days I just muddle through as best I can.