Christina KochMar 10

By Otto Kolbl and me:

Why were we so unprepared for #LongCOVID? Because long SARS was largely ignored and psychologized. Researchers failed to make the connection to #MECFS, #POTS, #SFN, etc. — despite having all the data.

German version coming soon!
https://ottokolbl.medium.com/we-ignored-long-sars-and-let-long-covid-suffer-the-same-fate-336372fe39d7

SARS’s Long Shadow: We Ignored Long SARS — And Let Long COVID Suffer the Same Fate

Christina Koch, Otto Kolbl

Medium
Show threadLyndsay BarwellMar 10
@juchti also I have recently found out there are very high rates of fatigue after sepsis, probably similar to SARS, and this is completely unacknowledged on discharge from hospital.
Show threadChristina KochMar 10
@treehugger Will reply more in detail tomorrow! Yes, I am aware of the sepsis patients with fatigue (and often they fulfill ME/CFS diagnostic criteria). It's a shame that all of this is being ignored and specialized clinics are closing (though some never made it beyond GET and CBT)
despite the fact that numbers are rising! People are desperate!
Show threadLyndsay Barwell
@juchti indeed. Without clinics, there is nothing to even improve. I was shocked to learn Manchester doesn't have one. And mecfs fits in nowhere else. I have long covid, as does my husband and now his child has deferred uni due to post sepsis syndrome! Feels like we're going backwards despite all the advocacy and promises from government.
Mar 11 at 12:08amWeb