The Inaccessibility Cycle
The Inaccessibility Cycle
So often I'm the only person where I am in a wheelchair.

@fullfathomfive
People need to understand that they are only temporarily abled. Our faculties are fragile. We could lose them in an instant to an accident or just because of our genetics. But even barring that, we will certainly lose them as we age.
Even purely out of selfishness, sooner or later, #accessibility becomes important to *everyone*.
This is a #stigma cycle.
@fullfathomfive thereās levels of disability too: my daughter has very high support needs, so activities and facilities that claim to cater for disabled people often donāt cater for her: we need hoists for toiletting, swimming, using beach chairs, etc. she needs a mashed/liquid diet. She needs to avoid infection
I did my best to āmanageā for many years, to give her the best life and involve her in the community, but now I have long covid, and I no longer have the energy
@oftencalledcathy I'm so sorry you have long covid. It sounds like an impossible situation for you as a carer.
It's so shitty that our society decided it was fine to destroy the lives of so many people, because people who have no concept of our interdependence on one another didn't want to be mildly inconvenienced.
The Social Curse of "What You See Is All There Is" comes into play here.
@daedalousilios I think when they're aware of it they realise how wrong it is, but there's a visibility issue. Out of sight out of mind. Designers won't design for people they don't even know exist.
But this lack of visibility leads to worse outcomes for everyone, not just disabled people, because we know that disability-forward design makes things better for *everyone* (e.g. kerb ramps make streets safer and more accessible for people with strollers, people on bikes, and people with heavy loads).
@fullfathomfive @daedalousilios I have long covid and need to pace exertion.
I went to a talk at a building at work and simply getting to the meeting room involved following signs to the stairs, retracing my steps to get to the other end of the building where the elevator was, and crossing the building again on the 2nd to get to the meeting room. By the time I got there I had no spoons left for the meeting.
A year later I was given the job of managing the building. The first thing I did was to renovate for accessibility for people with energy/limiting disorders. I moved the public spaces as close to the front doors as possible and simplified traffic flow through the building. And I made sure there were signs so people didn't waste energy figuring out where to go.
And now the building feels welcoming instead of like it's trying to keep people out. Reducing my exertion burden reduced everyone's exertion burden, even people who didn't realize it was a burden they were carrying.
@daedalousilios @fullfathomfive One thing I can think of is because it would cost several tens of thousand of bucks to retrofit the building only for mobility reasons. Never mind making it allergy-friendly.
It's either burn out people and money trying to become accessible, or continue the project as it is.
It's not all malice.
@fullfathomfive should be offramps for specific circumstances like local businesses or small software groups that don't have the resources and crew numbers available in the immediacy to instantly solve the problems of lacking.....
having just said that, it's less to basically zero of a believable issue with larger companies that absolutely have the financial resources to hire out and solve issues. but I somewhat believe data statements like this are very much double edged swords of both truth, and a lack of patience in current day mindsets.
to put it another way, something can be right and still not fundamentally solvable based on the context of the circumstances. but so much these days is described as black and white when the hard pill to swallow sometimes is "it's complicated"
or to summarize even more....
"Gawd what a fucked up world we live in"
Rioplatense Spanish version, plural first person + reappropriated slur (disca) because I am disabled + whatever changes I thought made it better (probably wrong so feel free to ignore them).